Just a quick update and a huge thankyou.
I’ve really appreciated everyone’s help (particularly from those who have been on this roller coaster so much longer than me).
The advice so many of you gave me when I was trying to decide on a promotion when things were headed steadily downhill helped me keep my sanity.
I did take the promotion, and was just hanging on by my fingernails, and just over a week ago had finally accepted that it wasn’t sustainable unless something changed.
Then last week I finally got my hands on Enbrel. I’m sure it doesn’t happen for everyone, but there was an enormous change literally overnight. I took it at 6.30pm, and woke up the next morning almost symptom free.
I’d been having a pretty good couple of weeks, and before the Enbrel I didn’t think I was stiff, just a bit of a niggly pain here and there. After the Enbrel I felt positively floppy!
I got to play chase with my little girl, laugh again with my husband - so very exciting!
There have been a couple of slight side effects, but nothing I wont happily endure for these results.
I was supposedly a MTX responder, but always still felt unwell and exhaused from the disease while on it. Finally I don’t have the sensation of being sick - and I seem to have so much more stamina!
Now I’m looking forward to the next injection (Wednesday night), because unfortunately it had started wearing off by Saturday night, so bits of me are starting to feel a bit shabby again. Hopefully a few cumulative doses and it won’t wear off as fast.
So again, a huge thanks to all of the people on this forum who helped me keep my sanity while I was looking for some hope (and I’m sure still will in the future).