Finally after weeks of fighting with my insurance I was approved for remicade infusions, although not as often as my doc wants, its better then nothing. I had my first infusion yesterday and thanks to the prednisone I have been on and the iv steroids I received with my infusion yesterday I feel like a new person. maybe my life can get back to normal now that I am back on the remicade. I am tired of feeling like an ongoing research project. I had a long talk with my rehummy and told her I am tired of trying every new medicine that comes along with no positive result from any of them. we know remicade works for 5 weeks so I would rather just be miserable for the other 3 weeks between infusions then all the time. I believe I finally got my point across to her.
I love this site and appreciate everybody sharing their stories. I have learned a lot and don't feel so alone with this disease anymore. thank you all for sharing your lives with us