Some Exciting News!

Well it's official! My hubby and I are travelling to the UK for three weeks in October this year!

While this is super exciting and I am really looking forward to travelling outside of Australia for the first time ever, I am a bit aprehensive about how my body will handle it all.

I feel that I am at a point in my treatment that I am doing well, the Simponi seems to be doing its job. So hopefully I will be ok, I do not want to be in a (somewhat) strange country and be in pain. Its bad enough just being in pain. :)

I really want to enjoy my time over there, I want to see as much as I can! But it will be a big strain on the ole body.

I have a rhuemy appt in April, so I will be talking to him about these things as well, hopefully he can give me some advice.

So thats where I am at... Any thoughts/advice on how handle long haul travel??



Hi Louise

That is very exciting for you, to be traveling outside of ones country. I hope your body cooperates and you can have a pain free, or as limited pain days as possible. I have always tried to sched. Doc appts. just before I go so that I knew exactly where my body was at and also to make sure i had refills for any pain meds. as well as all my other meds ready for the entire lenght of the trip. Also big word of caution, take your meds. with you in your carry on luggage. Sent mine in my checked baggage once and all my meds were there except my pain meds. Would not that happen to anyone else ever. Safe Travels and Take Pictues I wanna see.

Lucky Louise! Long haul is just exactly that -- and it's an even longer haul when you are dealing with a chronic condition! My secret is booking a seat in first class ... lie flat bed etc. ROFL.... kidding... I always fly back-of-the-bus economy! And what has worked for me many many times on flights of more than 10 hours, is to take a sleeping medication. If I take a sleeping pill, I have much less pain and stiffness that comes from sitting in one position for an extended period of time. I've tried over-the-counter meds, but they don't even come close to the effectiveness of a prescription sleeping pill. Trick is, you need one that doesn't leave you with a hangover. Discuss it with your doctor, and I'm sure s/he will come up with something that will work for you. And before you take it on the plane, try it at least once at home. (Oh, and when you tell your friends you are doing this, they will say "oh, just have a stiff drink, oh just use seasickness pills, just take this herbal stuff ... trust me, been there, tried all that, and you will get off the plane feeling like a bag of dirt.)

Also go through the "what if" scenarios with your doctor. Like, what if, despite Simponi, you get a flare or pain when you are in the UK? Should you go "armed" with a course of prednisone, to use if necessary? A pain medication? For sure, you can get those in the UK as needed, but you might be spending precious days of your holiday trying to ride out whatever-it-is, and hoping it will go away on its own, and then more holiday time waiting to see a doctor if it doesn't. Better to go prepared!

And yes, take your meds in your carry-on baggage. Except for a 3 or 4 day reserve supply in your checked luggage, along with prescribing information. That way, if your carry on is lost or stolen, you will have a few days to replace your medications. My pharmacist prints me two copies of a "patient summary" for each trip: one for my purse, one for my suitcase.

Finally, ask for wheelchair assistance at the airport. Even though you are fine walking, queuing/standing for this and for that really takes it out of you. When you get to the UK, you don't want to spend the first quarter of your holiday recovering from the journey.

If I think of anything else, I'll add it. What a great adventure for you! And what a great thing to look forward to!

Happy travels, and yes, we want to see pictures. ;-)


Just to reassure you - they have pain killers in the UK too ;-)

I've heard they have electricity too! :-P

GwynnethP said:

Just to reassure you - they have pain killers in the UK too ;-)