Hi everyone,
Just got off the phone with the drug manufacturer, they are going to supply me with Otezla for free. I sure hope I can tolerate it, I here it takes about 6 months to kick in, so I will continue also injecting MTX, I am at 13mg or 1/2 cc once a week. We still have not identified if I also have AS or if I still have SLE Lupus. I am continuing to take antimalarial Rx too.
Some more good news, my oncologist says that the recent blood test, is not high enough to diagnose cancer, he is retesting it in November. So I can focus on getting PsA under control.
Jon
Great news, Jon, both the Otezla grant and the oncologist’s advice. Forward march! Here’s hoping the Otezla’s not too hard on your digestive system, as you say.
I saw a new Rheumy and she said Otezla has shown to be good for enthesitis. It's not approved yet in British Columbia but when it is I hope to try it. The Rheumy said there are less side effects(no liver testing), the main side effect is bowel issues but apparently after a month or two this seems to go away. Good luck and keep us posted!
Hi,
I have been on Otezla for 3 weeks now, no serious side effects, although it does alter your taste for foods some. It is hard to tolerate with oily or cooked food, I simplified my diet, eating more fresh fruit and veggies, which is better anyway…
As far as the cancer testing, they are going to retest me in November. The doctor says I may have APS, which is yet another Autoimmune disease.