Sorry for getting upset. It happens sometimes though.
Is this my life now? Living with swollen joints? I don’t want this! I don't know anyone who would want this! I know “if you deal with someone else’s problems you will want yours back." But I am never going to deal with someone else’s problems and I don’t want to deal with this.
I think I might have arthritis in my thumb now and I am hoping I don’t but right now I can’t even button my jeans and aleve and that kind of pain medicine isn’t working and I hurt all the time. I’m so sick of this. And all the time I hear “just work through it. You have to work through the pain.” I just want to say, "trust me, if you felt like this you wouldn’t want to work through it." I just want one day where I can lay in my bed and refuse to get up and move.
Everything just hurts to much. I’m so fed up with this pain. I’m sick of it. I want to stop hurting. Right now it seems like amputation would hurt less. I just took Aleve and instead of making me hurt less its making me want to vomit. I guess this is why I haven't taken it in a while. It doesn't mix well with MTX. I want to go to bed and not move and I don’t want to get out of bed in the morning to go to school.
Sorry for getting upset. It happens sometimes though.
Your in my head! It’s hard when your young and you watch everyone around you living rather normal lives, doing everyday things that take you more motivation, focus, effort, and time than they will ever know or understand. Pain is more than the hurt, it’s the mental exhaustion, physical exhaustion, the emotions, the limitations. When you focus on it all it’s overwhelming and helpless feeling. I think It’s good to allow your self time to mourn the “normal” life this has taken.
Hopefully one day there will be a cure! and we will all be able to embrace this disease as a memory of the past. I hope for everyone we all have that one day! Until then there is the good the bad and the flairs. I’m learning it’s all a little bit easier with a place to vent about it and knowing you are not alone in this.
Lena, it really is. I wish they did understand that it takes more effort but they don’t so I kind of have to hide it. And you are exactly right. It’s more than just the physical hurt. I also get so tired of being tired it makes me wonder why I get up if all I want to do is go back to sleep again.
I really do hope they come up with a cure because this is something that I would not wish upon anyone else no matter how mean they have been to me. I really like this website because it does help me realize that I’m not alone in feeling this way.
I hate when others say, be positive, do things and you'll forget how you feel. I have 1 very unsympathetic friend (male) who doesn't tolerate complaints of pain. Some people don't understand. The weather here in Southern Ontario turned to rain and very achy now. I find a heating pad helps, feels nice, and voltaren emulgel, but ask your pharmacist first. Yes, no Aleve, Advil, only Tylenol to mix with MTX. I hope you're feeling better soon and especially your thumb.
If it’s more localized pain and you don’t need oral NSAIDs, why not ask your doctor about Voltaren gel? It can give you another tool. It’s a topical NSAID and may work better in some cases. It may at least be worth a try.
I’m sorry you’re having such a rough patch right now.
Meri, I know! its impossible to forget how you feel! Because once you stop moving or if you move around to much you start to hurt even more! Heating pads are the best invention ever. Thanks for the well wishes! Hopefully the rain lets up where you are!
Stoney, I will talk to him about it. At this point I'll do anything but shots to make the pain go away (just not at the point where I'm totally comfortable with needles yet)