My Christmas gift!

A friend gave me a Migun massage table! It feels so good, heated massage! They sell for around $5k (which is a little gimmicky, curing even the common cold) and pricey! But for free, I will take it! Tried it last night worked great, I have to put more towels between my SIJ and the heated jade balls, as they are hard, but should be able to do two treatments a day. Hopefully help with the PsA stiffness. At least will give temporary relief without having to pay someone $100 for a massage…

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Jon, maybe you should rent it to members of this forum! Congrats, anything that brings relief is good news!

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OMG I’d love one of those!!! Too speedy, tho…

My daughter gave me a chart with 5 stretching exercises and I’ve started doing them a couple times a day…they are helping!!!

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I could mount it on a trailer and drive from member to member… :grimacing:

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It’s a long way by trailer to the UK! :joy:

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pontoons and paddles!

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Wow, that’s the kind of friend to have, Jon! It sounds wonderful. Rather than putting it on a trailer, I think you should set up a corner with warm breezes and windchimes where PsA members can drop in and get soothed. And if none of us show up, you’ll just have to use it yourself!

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That’s terrific! I’m looking up the infrared heated mats with stones. A friend of ours have me a light to try but I have TOO many areas for one light to work on! It’d be a full time job! I see used beds for sale on FB but I’m not sure about spending any amount of money and not know HOW well they treated the machine. I watched a video and the man said don’t sit on the balls when you lay down, or you might damage it. When you end, make sure they come to a stop near the head

Good deal. Enjoy. I’ll keep looking. I agree. I spent too much money on deep tissue massage. They hurt SO BAD but have me 2 days off relief. I’d have to take a pain med just to go get one!

Not enough ppl talk about the tendinitis. Sometimes I hear ppl getting joint replacements and I’m thinking, what if it’s really just the tendons?

My story was that my Dr threw me in a pain clinic with neck pain and no DIAGNOSIS. I say in there for years b4i “failed” out and it was “time for neck surgery”. When one surgeon said I wasn’t ready. Another told me “I’ll do if you want it” :roll_eyes::fearful: red flag. Finally pursued different rheumies and had to wait for DACTYLITIS and TAKE A PIC of it! For Drs to FINALLY… YEARS OF SUFFERING… Get a diagnosis. That hip pain I had years ago? The one the stupid pain clinic guy injected and didn’t work? Was my IT BAND!!!

Beware of the tendons and ligaments!

I did buy a roller on Amazon to try self massage. It all helps. Just got to do it.

Peace y’all!

Good advice about not sitting on the jade balls.
I don’t think a lot of people could handle this level of deep tissue massage, I have been getting it for some time, it does not seem to bother me, a little tender in the SIJ area, those stones are hard!
Could be a problem with buying used beds, especially the older ones, they are not supported by the company, it is kind of a scam really, they want you to buy it only from a distributor. If something goes wrong with this I can send it to Los Angeles, so not a big deal, but not to many service centers. But it was free, so what the heck?
I am mainly trying to work on my calcified posterior tendons and muscles running along the spine, might be to late for them, but worth a try. It resembles AS but the Rheumy said it is actually DISH, the ligaments calcify, and fuse the spine, or look fused. Spine looks like a Salvador Doli painting of melting clocks. It is like melted wax…

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Awe. I’m so sorry. I guess we all have to have something. Do you ever use Prednisone?

Only tried it once, it was prescribed by my foot doctor a couple of months ago, I felt great! My Rheumy’s have always refused to give me any.

Totally agree, LaMomma. I had various types of pain (and bad pain, like waist to toes, which kept me awake at night) for years, but rarely in the joints. I also had “plantar fasciitis” in the feet. Doc insisted it was lack of exercise/needing to lose weight/needing to learn to relax/ needing orthotics/ and finally OCD. All my own fault, in other words. I got to the point of erosions in the foot joints before “they” took notice. I think the tendinitis is the thing that “they” blow off as being just … oh …nothing really, and, IMO, that’s how a lot of PsA diagnoses are missed.

In the case of joint replacements, though, they won’t do those without x-ray evidence of serious joint damage. But joint damage can also be from wear and tear, so I guess you could have joints replaced and still have nobody question that it could be the result of anything but being old and fat, like me.

Yup, it’s a slippery fish to catch, this disease of ours.

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PS our newest member, @Flstc1, who I approved about 10 minutes ago, describes what sounds like tendinitis issues to me.

Let’s welcome John from Chicago to the group!

Seenie

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I think a lot of what we think it tendinitis is a actually a type of enthesitis, since Cimzia is working for me to calm the enthesitis, my muscles are much more relaxed and the tendons are not as taught. Pain that I thought was permanent damage is gone… (knock on wood!)

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Thank you Seenie. Glad to hear you are getting relief! :smiling_face_with_three_hearts::smiling_face_with_three_hearts::smiling_face_with_three_hearts:

Right. I actually used them as interchangable. But with the emphasis on connective tissue as opposed to the Bone. I’m glad to hear that something I HAVEN’T TRIED…ie cimzia Is working for you and works on the tendons. Bcz I’m afraid that cosentyx is starting to fail. It’s awful. I’m running thru these meds so quickly :flushed::flushed::flushed::flushed::flushed::flushed::flushed:

So good to hear Jon! Cimzia was good for me too

Welcome to the group! Sorry you have to join us, but we are glad to have you!

@LaMomma, are you on the 150mg or 300mg dose of Cosentyx. Because if it’s the 150mg - you at least have the chance of increasing it to 300mg. If it is the 300mg if you’ve not been on 6 months, it still has a chance of proving itself. Crossing fingers for you.

Hi! I’m so sorry! I always forget to check this site. I’m on 150mg. I’m going to ask Dr in March about going up.