Med cooler

My husband and I haven’t been out of Alaska (other than for short medical appts in Seattle) for a couple years now and, provided we aren’t supposed to get 20 feet of snow again this year, we’re hoping to do so this winter. I’ve made short ish excursions with a cooler for my Humira but now getting out of Alaska to just about anywhere other than the Pacific Northwest takes well over 24 hrs of travel. Usually without access to a freezer/fridge. Since I use Humira weekly I will have to travel with more than just 2 pens, meaning I need to be sure they stay properly cold during transport. And possibly even at the destination. I have a cooler with ice packs good for up to about 12 hrs but after that is a crap shoot. I’ve been looking at little battery powered travel med coolers. Many are too small for more than one or two Humira pens since they are designed primarily for short trips with stuff like insulin/needles. I’ve seen several that look very promising, and fairly expensive, but the user reviews are all over the map regarding temperature, longevity, etc. So I’m asking my peeps here if anyone has one of these travel med ‘refrigerators’.

A different take. . . Can the meds be sent directly to your location while you’re away?

Also, humira can be at room temperature for some time.

From their website at Web site

Can I store HUMIRA at room temperature?

If needed, for example when traveling, HUMIRA may be stored at room temperature up to a maximum of 77°F (25°C) for a period of up to 14 days, with protection from light. HUMIRA should be discarded if not used within the 14-day period.

When not traveling, store HUMIRA in a refrigerator at 36°F to 46°F (2°C to 8°C) in its original carton until you are ready to use it.

Sharon

When I was on Humira, our dispensing pharmacy offered to send it any where I was traveling. If you are staying in one place, it would be easy for them to ship it to your location. I think it is a courtesy.

Thanks for replying. @Stoney and @Amos yes, I know about the 14 day thing. And I’ve thought of trying to get it sent somewhere close to wherever we will be. Although we haven’t decided where we want to go just yet. My husband wants somewhere with no snow and warm. Winters here the last few years have been brutal. Just last year literally 20 feet of snow at our house and a longer than normal period of sub zero temps.

I’ve had UNBELIEVABLE issues getting Humira complicated by being on high dose weekly injections. Meaning 4 pens per month. Once it was delivered nearly frozen. Several times it was already 68 to 72 degrees when I got it. So 2 pens were already Lord knows how long into the 2 week ‘safe to use zone’ and the other 2 not usable at all by the time I needed them. But now going through Costco I think I have found a FAR more reliable source so that part should be taken care of. My concern is if I have to travel with more than 2 pens I need to have a reliable way to transport what will not be used within 2 weeks. Abbvie no longer provides travel bags with ice packs, however on eBay I managed to find the exact bag they used to give away. But sadly without the ice packs designed for it. I have ice packs that I did a trial run with yesterday and was VERY impressed and surprised that after 16 hours it was still in the temp range. But I did not have anything but the ice packs in it and I did not have anywhere particularly warm to trial it. Both factors will make a difference in longevity. I guess if all else fails we could always plan our vacation around Costco locations and pick it up that way.

Other than just traveling with it is storage when we get there. If our only option is one of those hotel mini fridges there may be an issue since they are somewhat notorious for erratic temperature fluctuations with warm and cold spots, not to mention rapidly warming every time the door is opened and taking awhile to cool back down. But I may just be obsessing. I will admit with the incredible hassle I’ve had getting it in the proper temp range and struggling with the company for replacement without charging me (it’s not my fault they sent it inadequately packed!) I’m just a tad gun shy.

I plan to talk to the pharmacist here about getting it from another location during vacation. And look into all the lovely vaca spots Costco may be :laughing:

Thanks. Y’all are the BEST!

@Amos We also don’t know if we will be in just one place. We’ve talked about a road trip but IDK.

I hate to be the one to say this but any Humira/Adaluminab biologic isn’t supposed to be given to PsA patients weekly. It can cause your psoriasis to flare amongst other things. Only RA patients can take it weekly. It’s the same with PsA patients being given Hydroxy too as that’s great for RA and Lupus issues but is effectively banned for PsA patients worldwide.

Thanks for the info.

So far it hadn’t caused any issues and I’ve been on weekly for nearly a year. However I may need to switch to something else shortly anyway since it seems to be losing efficacy for me. Hydroxy was the first med prescribed eons ago and that was a TOTAL no go! Although I usually tolerate just about any med quite well I usually have to take a higher dose for them to work. IDK why but it really sucks when pain meds are involved. :persevering_face: However hydroxy was in its own category of bad, besides waking the Ps dragon it did other stuff to me also.

I wouldn’t mind switching. I am rather badly needing thumb/wrist surgery that I am not looking forward to. My ortho said if I do switch I should consider doing it before I start the new one since I have to wait for Humira to clear beforehand. So Humira may be a moot point shortly. My rheumy is thinking Enbrel. I haven’t yet discussed with him why another TNF inhibitor rather than an IL. But that will be a discussion before I do switch.

Is Humira your first biologic? Surely not? If you also have troublesome psoriasis along with PsA any of the IL17 ones Cosentyx, Talz or Bimezelx are meds of first choice really in countries like the USA without a med funding protocol issue. I had nearly 5 wonderful years on Cosentyx until it suddenly died. But given I’m in the UK I wasn’t allowed to start Cosentyx until both the Humira and Enbrel biosimilars failed me. Which they did. The Humira one hated me and I was whipped off it within 8 weeks. The enbrel simply didn’t work despite waiting 11 months. Each of us do react individually though so no one can tell which might be ‘your’ fab med. I’m now starting to do well on Skyrizi having started it in January.

Yes, Humira is my first biologic. I think he went with that to start with for a couple reasons.

One, the vast majority of my Ps is/was under my nails. Quite a lot sometimes, it’s so special when they pop off. I had it quite badly on my scalp as a kid and into early adulthood but it just suddenly went to ground when I was around 30. IDK why but the scalp has been clear for the last 40ish years. I actually have ‘really great’ skin, or so I’ve been told many times.

Two, he wasn’t convinced I had PsA. He was originally leaning toward RA. It is after all, far more common and, other than my nails, I had little visible Ps involvement. What probably muddied the water a bit is that most of my PsA issues are enthesis related, as opposed to joints. But now he is saying PsA so we at least have that settled.

I have a Telemed appt with him in December and will discuss the next biologic and why he’s thinking another TNF and not an IL. Like I said, he is open to me switching. I do have confidence in him. He’s the 4th rheumy I’ve seen. The first rheumy who initially diagnosised me stopped seeing patients a few months after I saw him because he went into research. Yay for research as he’s now the head of a huge biotech company but not so much yay for me. The next two rheumies either didn’t think I needed any sort of treatment or that I did not have any sort of inflammatory issue at all. “Just regular wear and tear arthritis.” :angry: My current rheumy was going to be my last try for help. If he had brushed me off like the other two I told my PCP that I would just wait until I had permanent damage to try again, which of course alarmed him. Not a good plan but the only alternative that was going to be left for me. So I’m happy to have found my current rheumy who not only takes me seriously but is willing to work with me. Plus he has a sense of humor. I can’t stand drs who take themselves too seriously and are confident in their godhood. :enraged_face:

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Any consultant with a sense of humour is a keeper in my view! Enthesitis is such a HUGE HUGE HUGE part of PsA though. Most of my PsA symptoms are tendon based.It’s a defining characteristic of PsA plus the nail psoriasis as well, although I don’t suffer that thankfully. Let us know how you get along in December although why is he making you wait that long?

He’s not really making me wait. December is just my 6 month follow up but he said to contact him sooner if I want or need to. He’s perfectly willing to work with me. Since I’m looking at thumb/wrist surgery and will need to stop Humira anyway. That would be the best time to make a change. So now I’m trying to figure out when the best time for the surgery would be. Ortho said it’s a rather long recovery/rehab process afterwards. Like 3 to 6 months. :confounded_face: I’m not looking forward to that.

I have a number of things that have specific deadlines coming up in the next couple months that require the use of both hands. Then winter will be on us. Good time to have surgery since I’m not outside as much then. But if we have another heavy snowfall year (20 feet last year) I won’t be able to help with snow removal. So I have to be sure we have help for my husband lined up in that event. We also would like to go somewhere warm (or at least warmer than Alaska) for a bit this winter, etc, etc, etc. Lots of moving parts here on top of the fact that leaving your house unattended in the winter and traveling anywhere out of Alaska is not as easy as traveling within the continental states. I know this sounds like just a bunch of excuses but I assure you it’s not. I am going to switch meds. But it’s not totally number one mission critical right now. At least I don’t think it is. My next step is to get with my ortho to discuss all of the above and make a plan. Then I can have that discussion with my rheumy.

Nothing is ever easy…

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