someone just recommended LDN for the psoriasis &psoriatic arthritis that I have.
Does anyone have any experience with this treatment and any advice. I would much appreciate it
D
Rise Above 64
I've heard of it. I brought it up to my rheumy, and she was vehemently against it. My impression is that it is a narcotic type drug, and doesn't treat the disease. Just a heads up, this might get moved to alternative therapies.
Its actually the OPPOSITE of a narcotic type drug. It messes immensly with the pain mechanism and renders pain meds ineffective. Its sorta like swallowing a TENS unit.......... The thing is if you think Predi is bad this stuff makes predi look like candy in regards to what it does to the adrenal system.
There have been some reports and small studies done with Fibro that record diminished symptoms which would make sense. This treatment has been discussed here before just search naltrexone.
There is a whole "movement" for LDN therapy. It is not mainstream medicine at all. Keep in mind Bowel is often associated with movement. You can search for it. There is also a couple of Yahoo groups
The whole LDN movement came out of the helminthic therapy movement which involves worms and probiotics. If only it were true a dose of Ipec syrup and and a high colonic followed by a cup of yogurt would cure most disease.
Its very much an alternative therapy in regards to PsA. However it has helped many overcome alcholism and drug addiction used short term. It does seem to have an effect on overactive pain response (Which is how it works on drug addiction) However it is rarley used becausde of side effects.
This is a worthwhile discussion but we will be moving to the alternative section in a day or so.
Thanks for your take on things,stoney and tntlamb, here in France my GP does not have the right to prescribe it, well that’s what he told me. However if I decided to try via Internet ordering, he would follow me, liver checks before treatment etc.
I guess I was hoping someone would say, yea it worked for me.
I reacted badly to remicade and use topicals and the occasional anti inflammatory, but the pso has come back out for the winter and the concomitant fatigue is a hard thing to deal with when working a 40+ hour week.
Happy New year everyone.
Doug
Thanks Lamb. I wasn't certain about it, other than my rheumy's response to it.
Hi, Riseabove64 I am too in France, and have started to take LDN after researching it online. It all started with the ldn trust website. It appears that it can be very helpful with autoimmune disorders. If it helps slow PsA progression is another question. I decided to try it after not getting on at all well with the sulfazine and naltrexone ended up in hospital, I was then after a 5min consultation from my Rheumatologist prescribed leflunomide and apranax, 3 days later...very ill again.... So lost a bit of confidence in my team...! I decided to contact a Clinic in Glasgow who have doctors who prescribe LDN, emailed my history over and was prescribed LDN in gradual doses. Up to 4.5 ml. For the first 3 weeks my symptoms seemed at one stage to get worse. then after the third week on 3ml my tiredness and pain levels were very much improved. I still have inflammation and the disease is progressing but much slower. Is there anyone else taking LDN for PsA and what other drugs are you taking to help slow the disease. I have no doubt in my mind LDN helps (when I stop symptoms come back !!) but it needs a little help through diet or other preferable natural ways. I know also that this is a very controversial drug as it can in some cases replace some very expensive alternatives. So in my experience is sometimes met with considerable resistance. Interested to hear from open minded people with real experience of LDN to share and compare notes/tips
Currently I take LDN 4.5ml at night and krill oil and flaxseed oil and slippery elm tea, gluten free, nightshade free, very low sugar. For pain Aspirin (yes that old fashioned one!) with a stomach protecting tablet (can not remember the name!) I am comfortable have minor flare ups but before my regime I had a very aggressive illness, but still have hope to make it even better...
Thanks in anticipation.
Riseabove64 said:
Thanks for your take on things,stoney and tntlamb, here in France my GP does not have the right to prescribe it, well that's what he told me. However if I decided to try via Internet ordering, he would follow me, liver checks before treatment etc.
I guess I was hoping someone would say, yea it worked for me.
I reacted badly to remicade and use topicals and the occasional anti inflammatory, but the pso has come back out for the winter and the concomitant fatigue is a hard thing to deal with when working a 40+ hour week.
Happy New year everyone.
Doug
Hello
Frogsleggs, pleased to meet you.
I've been on LDN for about 3 months, and whilst I must admit that i noticed a slight improvement, and a certain reawakening of something healthy, my pso and articulatory swelling and pain has kicked off again recently, probably as the result of the stress involved in losing someone close in my family.
So much so, that I am probably going to start humira next week at bayonne hospital.
Rather reluctantly so as I had a pretty bad experience with remicade.
I would have loved to have seen the pso and arthritis get better through natural means, (Pagano diet, omega 3s meditation, nautropaths etc, but it only very mildly responds and from the good side of the remicade experience I know that "biologicals" really can work wonders. I just hope that I don't get the same side effects as with remicade.
I'm telling myself that if someone who'd never tried paracetemol because they had had a bad experience with aspirin, then just maybe they may be missing out on something.
I'll keep you posted,
Cheers :-)
Frogsleggs said:
Hi, Riseabove64 I am too in France, and have started to take LDN after researching it online. It all started with the ldn trust website. It appears that it can be very helpful with autoimmune disorders. If it helps slow PsA progression is another question. I decided to try it after not getting on at all well with the sulfazine and naltrexone ended up in hospital, I was then after a 5min consultation from my Rheumatologist prescribed leflunomide and apranax, 3 days later...very ill again.... So lost a bit of confidence in my team...! I decided to contact a Clinic in Glasgow who have doctors who prescribe LDN, emailed my history over and was prescribed LDN in gradual doses. Up to 4.5 ml. For the first 3 weeks my symptoms seemed at one stage to get worse. then after the third week on 3ml my tiredness and pain levels were very much improved. I still have inflammation and the disease is progressing but much slower. Is there anyone else taking LDN for PsA and what other drugs are you taking to help slow the disease. I have no doubt in my mind LDN helps (when I stop symptoms come back !!) but it needs a little help through diet or other preferable natural ways. I know also that this is a very controversial drug as it can in some cases replace some very expensive alternatives. So in my experience is sometimes met with considerable resistance. Interested to hear from open minded people with real experience of LDN to share and compare notes/tipsCurrently I take LDN 4.5ml at night and krill oil and flaxseed oil and slippery elm tea, gluten free, nightshade free, very low sugar. For pain Aspirin (yes that old fashioned one!) with a stomach protecting tablet (can not remember the name!) I am comfortable have minor flare ups but before my regime I had a very aggressive illness, but still have hope to make it even better...
Thanks in anticipation.
Riseabove64 said:
Thanks for your take on things,stoney and tntlamb, here in France my GP does not have the right to prescribe it, well that's what he told me. However if I decided to try via Internet ordering, he would follow me, liver checks before treatment etc.
I guess I was hoping someone would say, yea it worked for me.
I reacted badly to remicade and use topicals and the occasional anti inflammatory, but the pso has come back out for the winter and the concomitant fatigue is a hard thing to deal with when working a 40+ hour week.
Happy New year everyone.
Doug