It’s been a bit of an awful year for me with the PsA - been on three different biologics now. Had to quit regular NSAIDs because they either didn’t work or did terrible things to my stomach (I know I know, I could take an acid blocker, but there’s not good things that go a long with long-term use of acid blockers too and I already have a touchy digestive system. Best not to mess with it too much). I’m afraid to use my Tylenol 4 on a week day because I don’t want to miss work (again) and I’m not quite sure how it’ll affect me yet. And this damn flare just won’t stop. It’s not as bad as some, so I guess I should take a little comfort in that, but geebus creepers the constant aches and pains and fatigue and fuzzy headedness is just too much.
Today’s not as bad as it could be. I finally got to wake up and move my head, after propping myself up in bed last night. I haven’t had full range of motion in my neck in over a week (and I still don’t, but it’s loads better after sleeping like I’ve got bronchitis, lol). At first I thought I was just sleeping weird, but now I’m pretty convinced it’s the PsA. sigh Though now that I’m at work it’s stiffening up again.
But the worst is my damn left big toe. Who knew you needed that silly toe so bad. It hurts just for my shoe to bump up against the knuckle, and I feel it when I so much as put pressure on my heel. And now my funny walk has pissed off the outside of my foot and my right knee.
And this bloody fatigue. I’ll be half asleep in my chair or bed reading, but I turn out the lights and get in my jamms for sleep and BING, no sleeping. What the crap self? What the blazing dickens?
WHEEE. It’s Wednesday, so only two more days to muddle through. I’d really like some energy to do home-things (and you know, do something nice for my g/f who’s been putting up with grousey, mopey, tired, achey me for MONTHS, poor dear) but I’ll be happy if I get some extra sleep.
Anyway, thanks for the space to vent. Sometimes you just need to yell into the void and shake your fist (or claw-hand).
Hi there! Sooo get where you are coming from and hopefully venting it out helps some. Right now my life seems full of lemons, then more show up just as I start making lemonade. You are in the middle of so much (trying to find the meds that work, quiting smoking, keeping on working, etc) then add chronic pain and YES you should yell your heart out and bang those fists ( or gorilla hands like I get,lol)! Just remember to only hit pillpws anything else is very bad idea… Just wanted you to know you are not alone, I could easily have written the same post and thank you. It helps not only you but others who feel the same way. Take care!
Hi Rachael,
I didn’t know you were trying to quit smoking. How is that going? I quit Nov 2011. I started smoking when I was 14. Back in the day, maybe before the tobacco people perfected addiction, I could drop them anytime. Long quits. Later it was, what I thought, impossible.
I cracked the code 5 years ago and got off them forever. If you want someone to help you, let me know.
Hi Dot! So far it’s not going well. Been such a long time since we chatted… I will send a new friend request so we can catch up. So great to hear from you! I could use help my biggest problem is managing how to cope with the unexpected life stress issues.
