Hi, has anyone also been diagnosed with a gluten intolerance please? I am still in the early stages of diagnosis and medication decisions but it would seem that my specialist thinks I have a gluten intolerance that is exacerbating my skin issues. My rash doesn't look like how I imagine psoriasis to look (or like anyone I already know with psoriasis) it looks more like the gluten intolerance rash, small bumps under the skin, some small water filled blisters that get a clear yellow crust if I scratch, almost like insect bites. This started in my scalp and has spread to my elbows, knees and hips. Any help would be very gratefully received.
sybil said:
I don't have the knowledge to reply specifically, nor experience of digestive issues. However I'm just wondering whether you see a dermatologist in addition to rheumatology? I gather that psoriasis can take many forms but if your rash is puzzling you, you need some answers from the specialists. Is the possible gluten intolerance being investigated? Sorry to reply with more questions, but I understand how much it helps to be clear about what you're dealing with or at least to have diagnostic investigations arranged.
Thanks Sybil, I have more results on the 13th and I suspect the next step will be a dermatologist, I have been told that PsA and gluten intolerance often go hand in hand, it has been puzzling me as my skin looks dreadful in areas but it doesn't look like typical psoriasis, however I understand that there are different types.
stratford gal said:
sybil said:I don't have the knowledge to reply specifically, nor experience of digestive issues. However I'm just wondering whether you see a dermatologist in addition to rheumatology? I gather that psoriasis can take many forms but if your rash is puzzling you, you need some answers from the specialists. Is the possible gluten intolerance being investigated? Sorry to reply with more questions, but I understand how much it helps to be clear about what you're dealing with or at least to have diagnostic investigations arranged.
There are lots of different kinds of psoriasis, which is why doctors often shrug off anything that doesn’t look “typical”. Mine was mostly in my toenails, and it was treated as fungus, unsuccessfully, of course. I did not pursue it, because in my head, I had the idea that the doctor’s waiting room was full of truly unwell people, and I just had a case of stubborn nail fungus. Vanity, you know! No doubt the doc thought the same. Had I been sent to a dermatologist, I would have been diagnosed promptly and my PsA might have been picked up years before it was.
Anyway, does yours look anything like this?
http://www.dermnet.com/images/Psoriasis-Guttate
I am not gluten intolerant, but actually have Celiac Sprue. My D2 and my grandson are also Celiac. In addition my daughter is wheat allergic, which is different and much more severe than Celiac alone. She must carry an epi pen at all times, because even a crumb of wheat is life threatening with full blown anaphylaxis.
None of us are show skin problems when we eat gluten. I had horrible acid reflux as my major symptom before being diagnosed. The Celiac and exposure to wheat destroyed my D2's gallbladder. She has also had many other internal issues because of the condition.
Interestingly we all three also have psoriasis and none of us have many skin patches. My son also has psoriasis and he has worse patches that the rest of us combined, but he can eat gluten and wheat.
Thank God I am the only one with PsA. I wouldn't wish this stuff on an enemy.
Testing if you are gluten intolerant is easy. VERY strictly eliminate all gluten from your diet for at least 2 weeks. See if there are any changes. Be informed however that IF you are intolerant resuming the gluten can be a huge deal. After my elimination diet time was up, I consumed just a bit of bread and was puking violently within minutes like if I had food poisoning!
Testing for Celiac can be much easier. While you are still eating the gluten on a regular basis the doctor can pull blood and send it for testing. A Celiac cannot digest the gluten and produces Tissue Transglutaminase Antibodies which the test can detect.
Farmfresh said:
I am not gluten intolerant, but actually have Celiac Sprue. My D2 and my grandson are also Celiac. In addition my daughter is wheat allergic, which is different and much more severe than Celiac alone. She must carry an epi pen at all times, because even a crumb of wheat is life threatening with full blown anaphylaxis.
None of us are show skin problems when we eat gluten. I had horrible acid reflux as my major symptom before being diagnosed. The Celiac and exposure to wheat destroyed my D2's gallbladder. She has also had many other internal issues because of the condition.
Interestingly we all three also have psoriasis and none of us have many skin patches. My son also has psoriasis and he has worse patches that the rest of us combined, but he can eat gluten and wheat.
Thank God I am the only one with PsA. I wouldn't wish this stuff on an enemy.
Testing if you are gluten intolerant is easy. VERY strictly eliminate all gluten from your diet for at least 2 weeks. See if there are any changes. Be informed however that IF you are intolerant resuming the gluten can be a huge deal. After my elimination diet time was up, I consumed just a bit of bread and was puking violently within minutes like if I had food poisoning!
Testing for Celiac can be much easier. While you are still eating the gluten on a regular basis the doctor can pull blood and send it for testing. A Celiac cannot digest the gluten and produces Tissue Transglutaminase Antibodies which the test can detect.
Thank you very much, I am still undergoing tests but have now cut out gluten completely and the horrible itchy rash has gone and I haven't had to take any anti histamines.
stratford gal said:
Farmfresh said:I am not gluten intolerant, but actually have Celiac Sprue. My D2 and my grandson are also Celiac. In addition my daughter is wheat allergic, which is different and much more severe than Celiac alone. She must carry an epi pen at all times, because even a crumb of wheat is life threatening with full blown anaphylaxis.
None of us are show skin problems when we eat gluten. I had horrible acid reflux as my major symptom before being diagnosed. The Celiac and exposure to wheat destroyed my D2's gallbladder. She has also had many other internal issues because of the condition.
Interestingly we all three also have psoriasis and none of us have many skin patches. My son also has psoriasis and he has worse patches that the rest of us combined, but he can eat gluten and wheat.
Thank God I am the only one with PsA. I wouldn't wish this stuff on an enemy.
Testing if you are gluten intolerant is easy. VERY strictly eliminate all gluten from your diet for at least 2 weeks. See if there are any changes. Be informed however that IF you are intolerant resuming the gluten can be a huge deal. After my elimination diet time was up, I consumed just a bit of bread and was puking violently within minutes like if I had food poisoning!
Testing for Celiac can be much easier. While you are still eating the gluten on a regular basis the doctor can pull blood and send it for testing. A Celiac cannot digest the gluten and produces Tissue Transglutaminase Antibodies which the test can detect.
If you find out that you ARE gluten sensitive or Celiac I will be happy to help you in any way I can. It takes a pretty strong learning curve to figure out all of the rules to that game when you are new to it. With help you can eat almost like a normal person and really not miss much.