What happens when you go to work and they don't want someone with limitations there?
Instead of me taking a whole lot of time off or not coming in, it seems that my employer would rather throw me out, because I am sick and not retiring fast enough to suit them.
One of the biggest companies and it seems they don't want what I can do and want me gone.
Big problem that I keep showing up. They are asking a lot of legalistic questions hoping to send me packing.
If I was sitting on the couch, it might make more sense to me.
I bet they wont work as hard proving I am disabled when it comes to disability pay!
I know it is so much, it sounds like it still has a big effect on you.
I feel so emotional about this, but I guess it might be the long time I have been working and I really don't know anything else. I had my life alongside a job. My wedding, all my children, a whole lifetime, my job has been there.
When times were hard in my life, it was the one constant.
I really hope they will let me stay, but I am at the point where they are considering if I can do every single thing in my job, while I have this disease. It is at an official determination right now.
I guess I am scared to be without my old friend. my job. I have the only income in our house.
It is so hard with all the feelings I have about this to soldier on. Just yesterday I was wondering if I should just go out, and I am losing it because somebody else has total control over my future.
I am going in, they will have to send me home., It is causing a lot of trouble with my disease though, the gut is reeling, I am having headaches and my stress is through the roof. It sure doesn't pay to be sick
Thanks for the advice, I will remember that when I want to give up.
Karen said:
Whatever you do. Do not quit.. My lawyer told me that..
It will make such a difference. Read up on American with disabilities act and FMLA.. If it doesn't help u with employer.. It will definitely help u get social security disability.. And as long as u r not causing them a big hardship.. They are supposed to accommodate u..
Do not let them rile u..stay quiet and if they try to... U can say. I will discuss that with my attny.. I'm sure they will turn quiet.. Best of luck. Thinking of u..
Karen
Dot said:
Karen thanks,
It is so hard with all the feelings I have about this to soldier on. Just yesterday I was wondering if I should just go out, and I am losing it because somebody else has total control over my future.
I am going in, they will have to send me home., It is causing a lot of trouble with my disease though, the gut is reeling, I am having headaches and my stress is through the roof. It sure doesn't pay to be sick
Thanks for the advice, I will remember that when I want to give up.
Karen said:
Whatever you do. Do not quit.. My lawyer told me that..
I agree with Karen, if you are with a large employer under the ADA they have to make reasonable accommodations to allow you to do your job. If they are saying that you are too disabled to work then they need to place you on sick leave then disability. Either way they do not get to just chuck you out the door. If you work for a small company they do not have the same obligations.
Dot you may want to do some research on what your options are. I had PsA about 30 years or more before I was diagnosed. I was active all my life, nurse and single mom of a very "busy" son. I realised in my 40s I was having troubles working the floors so I moved to a desk job, triage. I was still having troubles about 5 years later and took myself to Rheumatology and asked if this was PsA. The first time she saw me she said no, a year later I returned and she said, "yes of course that is PsA why aren't you taking a biologic?" I started a biologic but went to part time. I did part time for 2 years, changed biologics but just kept getting worse. I had bought a disability policy through work when my son was little. I went out on disability and made sure in my file were all the OT and PT notes as well as my rheumatology notes on my failures with biologics and my MRI reports. It can take over a year to get SS disability and lots of people are refused. Thorough documentation is your friend. I was a nurse so I knew how important it was and did receive SS disability. You may want to hire a disability lawyer to help you either way read everything you can before you leave your job. Disability does not pay as much as we wish it would but it certainly does help but you don't want to make yourself inelidgable by missing some rule.
I was sidetracked thinking they were going to keep me and you do get tired. I am just going to work and then sleeping and going to work. I have been to a lot of Drs like you they couldn't figure it out for a long time.
I probably would be able to get a disability but you know it's nice to think you have something left. It's like another grieving not to mention the trouble of worrying about money.
Good advice from everyone.
It does help to hear a little from people who have been there.
michael in vermont said:
Dot you may want to do some research on what your options are. I had PsA about 30 years or more before I was diagnosed. I was active all my life, nurse and single mom of a very "busy" son. I realised in my 40s I was having troubles working the floors so I moved to a desk job, triage. I was still having troubles about 5 years later and took myself to Rheumatology and asked if this was PsA. The first time she saw me she said no, a year later I returned and she said, "yes of course that is PsA why aren't you taking a biologic?" I started a biologic but went to part time. I did part time for 2 years, changed biologics but just kept getting worse. I had bought a disability policy through work when my son was little. I went out on disability and made sure in my file were all the OT and PT notes as well as my rheumatology notes on my failures with biologics and my MRI reports. It can take over a year to get SS disability and lots of people are refused. Thorough documentation is your friend. I was a nurse so I knew how important it was and did receive SS disability. You may want to hire a disability lawyer to help you either way read everything you can before you leave your job. Disability does not pay as much as we wish it would but it certainly does help but you don't want to make yourself inelidgable by missing some rule.
Yes..I just went thru it.. It was not so much them pushing me out the door.. The PsA did.. I went from being an exemplary employee to days away from being fired due to my job performance. The nights of no sleep either due to my fibromyalgia or PsA.. The drugs I'm on to help.. Caused me to have concentration problems, would fall asleep driving home.. It was bad.. I saw it coming..but didn't want to give up..
Dot.. Just remember... Quality of your life is more important than any job and you and your family come first...
There is a grieving process.. Because you are losing a life you once had..it will take time to adapt.. I still am I have been off work since the beginning of Feb..hang in there.. You will know when its time. Communicate with your doctor closely..
I guess I'm lucky that I have a small widows pension coming in from the V.A. that allows me to just pay my bills. I was working part time (15-25 hours a week) to get out of the house and make some fun money, but with this last flare even that little bit became impossible. I've started MTx and the side effects are worse than the illness so I may have to seek alternative treatment. Meanwhile I told my boss out right that I just can't do the job anymore. I struggled through a two week notice so that I am eligible for rehire if I ever get this under control. Meanwhile I had a major flare 3 years ago that put me out of work then too, I filed for s.s. and was told that while I was severely disabled there was still one type of work I could do, well I can't even do that anymore and I have filed again. I am hoping that if I can not get full s.s. disability I can draw on my husband's record early as a disabled widow. While I hate not working, I feel it is better to not work than to cripple myself trying.