Had a video appointment with my Neurologist, it was actually better then a live visit, we have already did hands on testing and balance etc. So something that overlaps in the PsA world, brain fog, I am sure some of you have it, I forget who…
So I am asking him about it, he is blaming it on poorly managed PsA, (They always blame the other doctor) and he tells me he will run a tilt table test, where I am on a tilt table, then they do a ultrasound image of the blood flow in the brain, to determine if it is impeded I guess by tilting factors or Autonomic nerve dysfunction? I have not researched what he Is looking for, but anyway, he was telling me that it would not be until August, meanwhile I am in a full blown flare since starting Cosentyx, almost 2 weeks of chronic fatigue, so I am saying, “good, because I have a lot going on in July I have a… a … procedure for… um… let me look it up on my calendar, oh ya, prostate”… It was a great demonstration of brain fog right before his eyes… I told him this has been going on for 20 years, I just tell people to “deal with it” but it is still embarrassing at times, when you can’t remember your good friends name. I was usually a little more rehearsed before going to appointments I guess, a lot of notes… Also unrelated to PsA but some might have this, it is phantom smells, I have been having for a couple of months, only when I have chronic fatigue and usually tinnitus, blurred vision. He asked what it smelt like, I said it was a new scent, (duh phantom!) So he is thinking I really got a winner now, I am surprised the paddy wagon didn’t show up to cart me off.
Thank goodness for essential oils to mask phantom scent with nice happy wintergreen!
Anyone have any funny stories of their brain fog to share? Phantom smells anyone? Or maybe I have been in quarantine so long, I will come out and someone will say “ew you stink!”