Hi all. I haven’t been on here much lately a lot has been going on plus tonsils out next week and grommets in my ears at 42. Anyway I am feeling very lonely and sore today. And needed to reach out to others that understand.
HI Robyn, sorry you're having a so sore today. I hope you have less pain tomorrow. What are grommets? warmly, Frances
Thanks Frances. Very teary and emotional. Which I don’t like. I am usually a rational person. I have good pain meds now but that doesn’t mean sometimes it doesn’t get to me that this is my life. Grommets are little tubes they put in your inner ears to drain fluid. Stops infections and clears hearing apparently. Normally done in kids.
I'm so sorry you're feeling miserable. Wish I could cheer you up. I do understand how hard it can be. Can you think of something to look forward to in the near future. Would that help you get through the next 24 hours? warmly, Frances
Well my granddaughter is staying tonight so that will be nice and it’s Mother’s Day tomorrow so yes I can focus on that. Thank you frances I needed that
Oh that's great that your granddaughter is visiting ! It's Friday night here in the States, so Mother's Day isn't for another 2 days. It always helps me to look forward to something - I'm glad it helped. I'm here if you want to chat.
Thanks, might take you up on that later.
Robyn my thoughts and prayers are with you. We have all been there. Sometimes a good cry is just what the doctor ordered. Then we can pick ourselves up, dust ourselves off and go out and live our lives as they are now. You can do it!
I agree. I think a good cry and I will feel better. Thanks Michael
Good for you Robyn. We are right behind you!
I do feel for you and I do know what it feels like on those days only too well. I don't know if this will help you, I make a decision about accepting it is going to be a bad day and I no longer put myself through this internal battle of trying to soldier on. I then have a plan of what I can do and how I can cope on these days. There are all the things that I try that might help, the ice, the heat bags, the TENs,Stretching and gentle exercises can be done in a chair after a hot Epsom salt bath. I use linament. The pain pills. Then I get comfy, lots of pillows and cushions for those sore spots. Lots of things on hand that I can do or will keep me occupied. I have a list to refer to. Stacks of books and magazines, dvd's, some chores like hand mending and sorting out bits and bobs. I have knitted some great scarves in plain stitch which takes no concentration when pain affects me. I have meals in my freezer because I so often cook double on good days. I hope I have helped in some small way. I do hope you feel so much better soon. I wish you well.
Thanks bella that does help immensely. I need to accept the bad days and not fight them no matter how often they occur.
Happy Mother's Day Robyn ! Hope you're feeling better today. warmly, Frances
I agree with Bella. I think I have worsened things by being in denial and soldiering on. When I can accept the limitations of today (though Lord knows tomorrow will be different!) I have a much better day despite it's limitations. I have learned just how stubborn I am through this disease. If I can relinquish my plans just a little I can enjoy the day as it is. Good luck Robyn we are here for you.
Thanks Michael. Happy Mother’s Day all
Hi Robyn, how are you feeling?
Hi there. I am ok. Bit nervous. Off to hospital for tonsillis out soon
Good luck - let us know how it goes.
Hi Frances. Thank you for thinking of me. It’s been very rough and awful post operative. My body has reacted quite badly. But I am slowly getting there and am well medicated. I am looking forward to reducing the pain meds in a few days. At least once I recover it is one less thing to think about and deal with. It had been a chronic problem. However I am realistic and I will still get infections elsewhere but they can be managed too. Even though I do have bad days I do thank god that we have medications though they may not seem to do much often keep me out of bed. I can’t imagine being sick like we are back in days without the medical know how and availability we have now. We are lucky in that respect.
I'm glad you're on the mend. And yes we are very fotunate with the new meds available now and more to come.
Robyn Andrew said:
Hi Frances. Thank you for thinking of me. It's been very rough and awful post operative. My body has reacted quite badly. But I am slowly getting there and am well medicated. I am looking forward to reducing the pain meds in a few days. At least once I recover it is one less thing to think about and deal with. It had been a chronic problem. However I am realistic and I will still get infections elsewhere but they can be managed too. Even though I do have bad days I do thank god that we have medications though they may not seem to do much often keep me out of bed. I can't imagine being sick like we are back in days without the medical know how and availability we have now. We are lucky in that respect.