Just when I thought I'd had a reasonably good day it hit me - The tears I don't know why. I'm currently off from work at the moment as my job is very active and over the last four weeks my mobility has got worse. Today I managed to do some decorating in the study, just painting the woodwork and I felt quite good.
When I finished I made myself some tea to drink, it was then I realised just how bad my mobility had got. I sat down and the tears appeared from nowhere, After 8 years of this disease things just aren't getting any better. just wish I could stop the tears, does anyone else get like this? I feel so stupid xx
When I have a wonderful productive morning like you did - and then rest after - it’s a mix of being tired & missing having more days like this. It really is hard.
JackieD, please don't feel stupid for the tears. There are days when I just can't turn them off. I have been known to drive home from work and cry the whole 30 mins. I used to go into the bathroom at work just to cry. It is very hard to deal with what we do every day. I totally understand your frustration at not seeming to get better. My rheumy keeps telling me "our" goal is to go into remission. Well, it hasn't happened yet and come to find out my rheumy before moving here had diagnosed me 6 years ago. This one in 09... I didn't know about the 06 diagnosis until I requested my records for disability info. I seriously don't know if anyone has every gone into remission with PsA.
So I am sending you a special ((((HUG)))) and a shoulder to absorb the tears. Just don't lean too hard on the shoulder...they are sore :)
Hi Alma bless you thank you for your kind words and hugs they realy helped. I am so glad I found this site as I was begining to think that all my problems were in my head, its been great to be able to share all my woes and high's with everyone - thank you so much :) xx
Alma said:
JackieD, please don't feel stupid for the tears. There are days when I just can't turn them off. I have been known to drive home from work and cry the whole 30 mins. I used to go into the bathroom at work just to cry. It is very hard to deal with what we do every day. I totally understand your frustration at not seeming to get better. My rheumy keeps telling me "our" goal is to go into remission. Well, it hasn't happened yet and come to find out my rheumy before moving here had diagnosed me 6 years ago. This one in 09... I didn't know about the 06 diagnosis until I requested my records for disability info. I seriously don't know if anyone has every gone into remission with PsA.
So I am sending you a special ((((HUG)))) and a shoulder to absorb the tears. Just don't lean too hard on the shoulder...they are sore :)
we all have days like this. I think it's because we are so strong most days and have to keep going through the pain. Some days we are "just fine" in that regard, we keep on keeping on... and other days it just takes over. Don't feel bad about it. Some days you just need a good cry and pity party for yourself for a little bit and then you keep going. I always feel much better after I get it out. I hope you are feeling better today!
Aah Thank you Natalieb, feeling better today, however my skin is so sore. Currently off from work but my employers aren't being very helpful. I'm contemplating leaving work for a while just so that I can get back on track. Trouble is as you know no two days are ever the same therefore its so hard to predict how I am going to feel from one day to the next. I feel so much better when I don't have to think about the impact work is going to have on me. I worry if I leave the Police force whether I will be able to get another jobn elsewhere given my health problem. Still rightly so as my Dr keeps saying your health is more important than work! I am so glad I found this site, I really appreciate everyone's support only wish I had found you all sooner - Thank you so much.. Big Hugs ;)
natalieb said:
we all have days like this. I think it's because we are so strong most days and have to keep going through the pain. Some days we are "just fine" in that regard, we keep on keeping on... and other days it just takes over. Don't feel bad about it. Some days you just need a good cry and pity party for yourself for a little bit and then you keep going. I always feel much better after I get it out. I hope you are feeling better today!
Please don't let me get started about crying, I went to my local shop and I couldn't get what I needed, so yes you've guessed the tears started. The stupid thing is I don't cry any more about what's happening to me. Anything can set me off, I can't do grocery shopping any more because it's such a struggle. The odd time I can go, I end up crying if they haven't got what i want. So I feel better now knowing it's not just me.
I'm a little late on this discussion because I just joined this group. I thrive on using my body - physical fitness, practical strength, the ability to take care of myself completely are my passions ... not to mention I do (and love) volunteer trail building in the Olympic National Forest and Olympic National Park (which is hard physical labor). Right now I'm on Stelara, which has my skin entirely clear (given that I have severe psoriasis, this is remarkable beyond belief) and my joint pain almost completely under control. BUT ... I am plagued by chronic and frequent and non-healing tendon problems which are taking me further and further away from my passions. Every new tendon flare-up is another thing I can't do. And I'm single (happily so) - living alone - wondering what the future holds with this disease and, oh yeah, my deafness too (two relatively new cochlear implants) ... So YES, sometimes I cry. In fact I curl up in a ball on the floor and just sob. You are not alone.
