Living every day not knowing how I will feel tomorrow is really hard for me. Will I sleep tonight? Will I be able to go to work tomorrow? Is 4 out of 10 on a pain scale good? What do "normal" people consider a reason not to get out of bed in the morning? Can they go to work, be on their feet for 8 hours and go home to kids, dinner and a healthy marriage when their pain is a 6 when they get home? Ugh....so many questions and few answers.
i know exactly how u feel. its the day to day living thats the hardest thing. Will I be able to carry the groceries in? Can i do a load of wash or is it too hard? I just got married, although my husband and i have been together for almost 5 years. It was a major shock when we began to live together as a married couple. I wonder the same questions, some of my family say that i have a low pain tolerance REALLY?
but will we ever know. Maybe not? Here is what its important…our emotional backing. I am still lucky enough to have my parents who help me tremendously
I could not have survived these past few months without them
Thanks girl.....luckily my new husband is supportive and my kids knew me before the disease got really bad. Having said that, it's hard to pretend that I can do everything myself when lots of days I feel like screaming at everyone then bawling like a baby :-) Most days I can give myself an attitude adjustment and say "there are a lot of people out there who have much worse illnesses and problems than I". Then I have those really bad days and it's hard to muster empathy for anyone. This stinks......
My arthritis has flared up over the last 2 weeks and my spine is so still and sore that I have to take tramadol every day to get through work. I’m waiting to see a rheumy in a months time, but I worry if I go and see the rheumy and they can’t help me, what do I do? It’s a scary thought and I know exactly how you feel because every night for the past 2 Weeks I have gone to sleep praying I don’t wake up so stiff that I can’t get out of bed to go to work 