I had an appointment with my rheumatologist yesterday (8-10-21). I had already sent him an email telling him I have never felt worse. I was switched to Taltz three months ago after a year plus on Humira EW (and Embrel and Cosentyx). I explained in my email to my doctor that something had to be done. I cannot do much of anything and things need to be done around my house. I suggested PT and maybe pain management. I had hopes that if I could get the amount of pain meds increased, I could tolerate doing some work around the house.
We had a long appointment. He told me he had hoped that the Taltz would have done more by now, and we agreed to keep going with it for 3 or 4 more months.
He sent me for a PT triage and I will start PT tomorrow. I have had considerable loss of range of motion in my hips and shoulders. Sounds like fun.
My mid to low back has been very painful for almost three months now. He poked and prodded and said it sounded like the large sheets of ligaments and tendons coming up from my SI joint that spread out over and up the sides were badly inflamed. We passed on any more steroids for now but he had both shoulders, hips and back x-rayed to see if calcification is beginning in those areas. He also ordered a full range of blood test and my state required annual drug screen.
He wrapped up by saying he did not know what else to do for me. Not the message I wanted to hear.
I stopped for the PT triage on the way out. The therapist and I had a long talk and he set up further treatments. He did say that if I felt disability was in my future it would be best to give the PT a try because it would be one more step toward saying we tried everything.
I have been very down the last month or so. My pain is such that I may as well not be taking the little pain meds I can have, they do nothing. Since I cannot take MTX or NSAIDS, I have nothing other than steroids for inflammation. I have been ordered to restrict my intake of Advil (et al) and Tylenol because my liver function test are showing some concern.
I have expanded my use of the Delta-8 THC that is now legal here. It does more for me than the Oxy does.
I am still working from home, but may soon have to travel one or two days a month. I am not looking forward to that.
As a side note, my wife seems to have gone on strike for the last 5 years. She does nothing to help keep the house clean and I can no longer do much of anything to help the situation. The stress from living in a messy house is taking a lot out of me. She recently developed some angina issues that her doc is controlling, but that does not explain the previous 4 1/2 years. I have had no success in talking to her about it. I am ready to pack my bags and get in my truck and just leave.
It makes me feel like my wife thinks that since I cannot do anything that she shouldn’t have to do anything. I am at the end of my rope right now.
I have battled drug resistant depression for almost 30 years. It has been controlled well since 2008, after they installed a Vagal Nerve Stimulator. But, I still can feel myself heading downward. I will see my psychiatrist in a few months and will talk to him more about the situation he is aware if with my wife.
I am really beat up right now and do not know what to do. Doesn’t sound like my pain situation is going to improve anytime soon, or my home life. I am finding myself fighting multiple battles right now. The PsA, my wife, and the pain and limitations.
I am running out of rope to hang on to.