Hi all. Over the last few months, I’ve found myself a bit short of breath. Not bad, but enough to get me to the doctor to get checked out bearing in mind my brother recently had a quadruple heart bypass, and my Mum has heart failure. I was a bit thrown when he said I need a chest x-ray to rule out fybrosis - not least because the shortage of breath only happens in certain situations, and will disappear completely for weeks or months at a time. Now, of course, I’m panicking. I was worried it might be my heart, not my lungs - and not something that can progress quite quickly. He did say he thinks the x-ray will be clear, but that doesn’t help my bipolar deal with the possibility of it.
It generally happens when I’m bending down (or, rather, just after bending down), and when I’m walking and talking at the same time. Most of the time, it’s not there at all - although of course it is now as I’m thinking about it. All the time!
I was quite surprised that the GP’s first thought was fibrosis on presentation of mildly out of breath on some occasions - especially when I’m overweight and not particularly active because of PsA. What’s more, I had a similar thing about ten years ago - just after I got diagnosed with PsA. On that occasion it lasted a few months and then vanished. It sounds weird, but his move towards fibrosis as an instinctive thing almost made me think he’d missed a case at some point and was never going to do so again. That sounds really weird, I know. I really did expect him to say “it’s possibly pollen as you’ve had it before - here’s an inhaler and come back if it doesn’t clear up.” That’s normally his way - try something simple before anything else.
I sing jazz every Monday in quite a traditional manner - so, with long drawn-out phrases with one breath - and I don’t notice at all, which doesn’t make sense to me if it’s actually lung damage.
I don’t drink or smoke or use drugs. never have - all the good that’s done my health! I feel I should just start living like Peter Stringfellow and see if my health improves in the coming years!!
My gut reaction is that it’s related to GERD more than anything else. I’ve got a flare-up of that at the moment, and also a worsening of the breathing thing - although I’ve just been bending down to fill up the washing machine and nothing happened.
But the doc mentioning fibrosis has had me panicking and Googling…and panicking…and googling…and a bit more googling. Apart from the awful prognosis of it (if I have it), the med sites can’t seem to make their mind up if there’s actually a link with PsA in the first place, because psoriasis is apparently linked to people who smoke, or smoked - therefore lung damage can be done before the disease even starts.
I’ve done a search of the forum and can’t find any threads where someone has ongoing fibrosis - which seems a bit odd if it’s linked to PsA or biologics, as many of us here have advanced PsA.
Does anyone out there have the shortness of breath thing - or, indeed, fibrosis. My 40s have been really crap, and I really don’t want to turn 50 next year with something new to worry about!
I hope you are all well - or as well as we get, at least.