Livin’, there’s just a bit of innuendo in your post. Have you shared your concern privately with the few others?
I structured my post so that the first paragraph referenced what Louise said, the second what you said, and the third paragraph was a general statement that others might find informative.
I am going state my opinion. It doesn’t matter what the rule is; if it’s not enforced consistently, then it simply reinforces alternative behavior.
Some of my post have controversial. However, it never been my attention to suggests to someone not to try medication or follow a doctors advice my attention have always been to questions things and conduct research. If a mod feels my post needs to deleted or whatever, im not going to cry.
Ironically, this rule has violated by a few mods on this forum several times. You can’t hope to get anothers to follow the rules when exceptions are made for others.
Louise said: Many of you seem to have been here a long while and seem to have developed a strong bond. That’s a wonderful thing, but combined with these posts telling others to mind their manners, it leaves me, for one, feeling a bit confused and apprehensive about saying too much.
… I feel the same way, almost left out. I couldn’t have said it better. I didn’t used to feel this way on this board but there has been a shift recently. I would never troll or flame anyone. Heaven knows I have enough problems in my life without seeking them out on a psoriatic arthritis forum. I am just lookin for information and support. I’m certainly not planning to make medical decisions based off what I read here. I that is the fear, maybe a disclaimer is in order and open, friendly discussions can resume.
No that is not the fear. We had several new members recently (no longer here) who waded into to discussions without taking time to know who or what they were talking about. One boldly declared I haven't used anything but an advil for 30 years..... and went on to explain it was weakness etc. That is a far cry from expressing concerns about long term use of tramadol. In another incident a member who has had numerous serious reactions to meds was told she simply needed to listen to someone who had this disease for 30 years and take a serious of meds ( despite the fact one of them had almost killed the person she was talking to) The third incident was a lecture about mental health care and the need to move on..... Just the thing a person with severe depression needs NOT to do.
Yes there are people who hsve been here longer than others and have formed real friendships and relationships. Newer members may not know the details of previous discussions and may feel left out. It doesn't take long to be part of the group. I haver never seen a thread ignored. But if you want to be a part of it, be a friend There are tons of opportunities to reach out. Some threads get 3 responses. others get 30. If you are the 31st it doesn't have near the effect as being the 4th. We have 2000 members from 115 nations. Chances everthing you read as they are opinions hits you wher you are at in a way that is pleasing to you are slim and none..What one person considers contoversial, brusque, rude, or insensitive likley has made someone elses day.
This is a tough place right now. It is every year at this time. The holidays are hard on people, but this is also the time of year disease levels sky rocket. Consequently there are times this isn't a very happy place. People don't normally hang around support groups if everything is cool.
TigerGirl said:
Louise said: Many of you seem to have been here a long while and seem to have developed a strong pbond. That's a wonderful thing, but combined with these posts telling others to mind their manners, it leaves me, for one, feeling a bit confused and apprehensive about saying too much.
...... I feel the same way, almost left out. I couldn't have said it better. I didn't used to feel this way on this board but there has been a shift recently. I would never troll or flame anyone. Heaven knows I have enough problems in my life without seeking them out on a psoriatic arthritis forum. I am just lookin for information and support. I'm certainly not planning to make medical decisions based off what I read here. I that is the fear, maybe a disclaimer is in order and open, friendly discussions can resume.