I'm not exactly new, but I don't post much. Nothing to lose by jumping in.
There are things I like very much about this site. You all have done a great job writing up basic information and getting it in order so it can be easily found. This site is moderated. The only other PsA site I've found is not, and there are too many flame wars, trolls, etc. I'm too old and cranky for that. I'm all for evidence-based medicine and appreciate that being the focus here.
So, why am I not more active? A few reasons.
The request often goes out to use the search function before starting a topic that may have risen before. OK, I'll just read old posts, even if they are somewhat peripheral to my current concern. Don't want to annoy anyone by asking something that's already been covered.
There is a narrative here: you get diagnosed, you fall into "the gap" for a bit, then life again becomes sweet. This is not how my story is unfolding right now. Not to say it won't later, but every joint I've had imaging done on is pretty well jacked, and treatment is not yet wildly successful, four tries with three biologics later.
I recently read a statement on this site that synovitis has nothing to do with PsA. I have some synovitis, tenosynovitis as well. Does this disqualify me? I don't know. The prevailing attitude towards prednisone is pretty negative. I would love to get off it, but that's just not feasible right now. My rheumy, primary, and endocrinologist are all on board with this, by the way. It's a low dose, I seem to be tolerating it well, but I feel that here, taking it is nothing to advertise. Oops, I just did!
It feels to me like there is an orthodoxy, and I don't always fit. I don't necessarily want to share my experiences on others' posts if what I have to add doesn't meet the standard of discourse.
Having the posts divided up into categories is a mixed blessing. It allows me to skip the one section that doesn't interest me in the least and the one I aged out of a few decades ago, but I probably miss things in other sections that I might find helpful or interesting, or that I might have have some insight on to share with someone else. I'd guess the same is true for others. With eleven sections, I'm sure I have missed plenty of posts on my random trips through here.
I said at the top that having the site moderated is a good thing, but I wonder if it does squelch discussion a bit sometimes. You all truly seem like lovely people, but I wonder if all the posts from people with a title under their photos makes folks feel that the question has already been answered by an expert. Which you all are, but the effect might be like the kids clamming up when the teacher walks into the room.
I'm not sure this is the sort of answer you were looking for, Sybil. It is obvious that a number of you put a lot of time and energy into this site, and it shows. Lots of great info here, and thanks for all you guys do. The discussions, though, don't always feel quite as open or welcoming to me as they do in other places. Maybe I just don't fit this particular mold, maybe I'm overthinking things. One person's late-night opinions.