Hi Everyone. I'm brand new to the site and wanted to say how excited I am to have found it. I spent a while reading posts and information on here before sending in my request to join. The best thing I saw is that it really is about PsA and the lives of real people living with it!
After 3 years of living, learning and accepting PsA, I am most often disheartened with the lack of specific focus on this disease. - Initial reaction of 'HOW can I have something I've never even HEARD of??' I've found that most of the information 'out there' is a very generic vague list of symptoms and treatment that often refers to more 'well known' conditions. I wanted REAL info, things that related to ME and the everyday struggle and triumphs of this new life partner.
While I'm sorry that you all have a need to be here, I breathe a sigh of relief that I see real people with some of the same questions I have, some of the same solutions I've found, some of the same grief I have at losing so many parts of my life, and most importantly - some of the same determination to not only make the best of this new life lesson but to turn it into an opportunity to grow and create a better me.
Welcome MB, I am new to the site too and have already found a wealth of information. It is just comforting to find others who understand what you are experiencing.
Welcome, MB! I love how you referred to PsA as your new "life partner." You put into words the way I've been feeling about my PsA. We all talk about living with PsA, and it is like living with someone who is suddenly an intimate part of your life with whom you need to learn to live.
My main focus, since getting my PsA diagnosis (I believe I've been living with PsA for most of my life, but was told over and over that it was other things or just in my head) ... and since finding out that I also have thyroid, liver and possibly adrenal problems ... is to be able to LIVE my life as best I can and to find joy despite the pain and limitations.
Hello nym and thank you for the welcome! I’m glad you found my personal perspective on living with all aspects of life inspiring. I look forward to this opportunity to share on the site. Thanks again!
nym said:
Welcome, MB! I love how you referred to PsA as your new "life partner." You put into words the way I've been feeling about my PsA. We all talk about living with PsA, and it is like living with someone who is suddenly an intimate part of your life with whom you need to learn to live.
My main focus, since getting my PsA diagnosis (I believe I've been living with PsA for most of my life, but was told over and over that it was other things or just in my head) ... and since finding out that I also have thyroid, liver and possibly adrenal problems ... is to be able to LIVE my life as best I can and to find joy despite the pain and limitations.
I can relate! When I was first diagnosed the only info I could find related to RA with only a vague mention to PsA. I have only recently found this group myself and I find it helpful to know that there are other people out there who I can share with, who will understand. Sympathy from my loved ones is great, but someone who KNOWS what it is like is better. :)
And yes, hopefully sharing and learning from this group, will also make me a better me :)
Hi guys! I’m new too, but not to PsA - had it for 19 years, but wasn’t diagnosed till 6 years ago. It’s nice to finally have a solid community of people that get my specific weird symptoms. I can read about RA and osteo all day but there are so many nuances to PsA that are tough to find info on, like all the soft tissue involvement. Anyways - glad to find new friends
