Hi, I haven’t been around much (mostly because my PsA was an uncontrolled disaster and I was dealing with that and all it entails and there wasn’t shit anyone could do about it, lol.) But something new has popped up and I’m hoping to lean on the knowledge of the community again.
Just curious if anyone else has experienced this. I’m currently undergoing possible dx of Optic Nerve Toxicity due to Methotrexate and have been referred to a neuro-opthamologist after 15mo of monitoring my visual field acuity and optic nerve imaging with my optometrist. Yesterday’s appointment showed that things seem to be getting worse so she referred me out and I have an appointment with the neuro-opthamologist next month (she’s also sending a letter to my Rheum and I’m wondering if I should just not take my mtx this week ).
I might be a little freaked bc I know that damage to your optic nerve is really bad and can’t really be repaired. I’m also worried about other possible causes (neurological issues like stroke or MS - especially since I’ve had some other weird symptoms like muscle spasms and my facial nerves freaked out after a migraine one day). I’m extra worried bc the neuro got me in much quicker than I expected (it’s usually 3mo) for an early morning appt, but maybe COVID is working in my favor there.
I’m finally on meds that seem to be working for my PsA and the mtx is supposed to help prevent antibodies to my biologic (Remicade). I don’t want to go back to where I was last year when I could barely function due to pain and swelling - I’m finally getting better and able to lightly exercise without excruciating pain… Ugh.