OK, who's had a Baker's Cyst?

My week has been less than optimal. On Monday, I had a pain in my leg which I thought was a muscle cramp. It got worse on Tues and Wed, and my leg got very swollen, warm and painful. Finally, on Thursday, I went to the hospital emergency room. They diagnosed a deep vein thrombosis, which is a serious problem, and they started me on anti-coagulant therapy. The pain was really terrible. On Friday, I went for an ultrasound vein study. When they did a ultrasound, they discovered I have a huge (like 8 cm, 3 inch) baker's cyst that has probably ruptured. I am resting now with my leg elevated (the only position which is comfortable for me), and I will see the family doc next week. I am also feeling rather fortunate that it wasn't a DVT.

Any experiences with one of these?

Sorry to hear you are not feeling well. I have not had any experience with that. But I do hope you feel better soon. Keep us posted :-)

As much as I am always looking for a new experience, I'll think I'll skip that one... Are you still taking the anti-coagulant therapy? Sometimes they stop the MTX if you are? This may be your chance for that glass of chardonnay you have been needing. Feet up some soothing music in the background cool glass - exceptionally lush with aromas of Meyer lemon, dried apricot and pineapple. Green melon, lemon cream and caramel making for a delicious entry, while citrus and tropical fruit flavors preceding a long, smooth finish. One big enough to stand alone, but delicate enough to enjoy with a variety of pairings.... Could be a silver lining.

Seriously sorry to hear, been wondering where you were the past few days.

Hope you're feeling better today!

I'm feeling much better today. The pain is less, but my leg is still a supersized sausage. I'm reading that it can take 1-4 weeks before the fluid that has leaked into my calf tissues disappears. Lovely, just lovely.

TNT, no, when they figured it out, they dropped the anti-coagulant idea. Fine with me! And your evocative words have set me California Dreamin'.

Sorry to hear of your lousy week Seenie, but glad to hear you are doing better. Stay Well.......Rich

Hi Seenie! I'm so glad to hear you are feeling a bit better today. After we talked about Baker's Cysts yesterday, I did some reading and found the same thing--it can take up to a month for the fluid from a ruptured cyst to be reabsorbed and eliminated. Ugh for my friend. Also, it apparently is VERY good news that they discontinued the anticoagulant in view of the ruptured cyst. Sounds like you dodged a bullet!!

Well, I wasn't going to drag this thread up to the top again, but I decided that in my cloud of misery, there is the silver lining of a bit of learning.

My leg, if anything, has been feeling worse. It is still very swollen, turning yellow/black/blue (right down to the ankle), extremely painful and tingling. I ran out of good pain drugs over the weekend, and in desperation I went back to the emergency ward yesterday. Fourth visit in five days.

It's a small town, and we all know the best docs, and I was lucky to see the very best and nicest. He reassured me that the pain, swelling and discolouration was just (!) the Baker's Cyst. Oh, and he referred to it as "the biggest Baker's Cyst known to man". I didn't know whether to laugh or cry. Actually, I did both.

So here is the part that helped me understand what was happening:

Even though I have a titanium knee, the joint tissues are still producing synovial fluid. The psoriatic arthritis is inflaming those tissues and they are overproducing fluid. The pressure builds, and the fluid overflows into the space behind the knee. In my case, this fluid-filled sac grew and grew as it filled with the overproduction of synovial fluid. Then, at 8 cm, it ruptured and the (inflamed) joint fluid (probably mixed with some blood) is now seeping down through my muscles and other tissues in the leg. Hence the swelling, inflammation and discolouration. And the pain, of course.

What did they do? Well, they aspirated my knee and sent the goo (it was thick and yellow, like mucilage!) to the lab. Then they gave me a shot of cortisone in the joint space, in the hopes of quelling the inflammation a bit. They hope that the cortisone will filter down into the leg to calm things down a bit. If I'm still in bad shape by the end of the week, they said they could aspirate the cyst itself and inject it with more cortisone. Oh, and they gave me a tramadol/acetaminophen painkiller, which dials the pain down from "excruciating" to just "bad".

For now, my knee feels a bit looser than before, but the leg is still painfully swollen. Every step I take makes me wince. I will take the offer of cyst drainage and infusion at the end of the week if I need it. Meanwhile, I'm lying here with my leg up, being thankful for small mercies, I have a nice, light little laptop, and fingers that can still type. And thank goodness I just happen to have a rheumy appointment next Tuesday.

I've decided that PsA is a thief and a vandal: it is wrecking my body and stealing my life.

You have a real talent for descriptive writing Seenie, By the time you were done "MY" leg hurt like hell, and there was nothing wrong with it today!!!! I know you are a lover of good wines but your leg sounds like you might need bourbon and ALOT of it. But you are right in having a small laptop, it let's you stay in touch with your online family. Hope you feel better soon........Rich

Thanks, Rich, you made me laugh. And goodness knows I needed a smile.

Another not-so-small mercy: being able to connect with others. A generation ago, I would have been alone, so alone in my misery. I love the people here!

Thanks again for helping me chin up.

Seenie

Seenie


Rich T said:

You have a real talent for descriptive writing Seenie, By the time you were done "MY" leg hurt like hell, and there was nothing wrong with it today!!!! I know you are a lover of good wines but your leg sounds like you might need bourbon and ALOT of it. But you are right in having a small laptop, it let's you stay in touch with your online family. Hope you feel better soon........Rich

This is not a good day for my friend! Sounds like you are having a time of it. I had so hoped that recovery would be swift and bring little discomfort. Now you know why I am a good optimist and a horrible orthopod. So sorry you are so uncomfortable. If I were there I would come and do your nails or something to cheer you up a bit! Hope tomorrow is better. Keep us posted!

You need to white a play!! Your way with words is incredible.
Not that it helps you but you bring me joy and laughter and tears to my eyes. I wish I could drain it right now for you.
Heat or ice might help. But your sense of humour will serve you
well also. Hang in there and when in doubt pray. Keep us up to date with how you are feeling. Thinking and praying for you !

Thanks, Kirsten! Who needs to write a play when PsA provides me with all the drama I could want, and more?

I'm glad you enjoyed my story -- I enjoyed writing it.

Hugs to you

Seenie


Kirsten said:

You need to white a play!! Your way with words is incredible.
Not that it helps you but you bring me joy and laughter and tears to my eyes. I wish I could drain it right now for you.
Heat or ice might help. But your sense of humour will serve you
well also. Hang in there and when in doubt pray. Keep us up to date with how you are feeling. Thinking and praying for you !

The Baker's Cyst Chronicles -- next chapter

So I guess I've been asleep at the switch. I've just realized that I didn't report on my visit to the rheumatologist. OK, so the nice docs in emerge aspirated my knee and offered me cyst drainage if I wasn't feeling better by the end of the week. Well I wasn't feeling better, but I thought I'd best wait until I'd run that by the rheumy, seeing I had an appointment with her the following week.
I went to see my rheumatologist, and gave her the lowdown (and the ultrasound report) on the 8cm cyst. She expressed surprise that I would "have allowed them" to poke a sharp object into my tkr knee. She said that she would never do anything invasive to a tkr knee herself -- if it got infected, she'd be in big trouble with her colleague the surgeon. Oh. OK. And then she told me about what happens when you get an infected tkr, but trust me, you don't want to know. I took a solemn oath, then and there, never to allow "them" invade my tkr knee ever again. Anyway, she referred me to the orthopedic surgeon, so that is good news.
It has now been a month, and finally (finally!) the pain has subsided. The leg, ankle and foot are still swollen, however, and the large swelling behind my knee means I can't bend it past 90. At least it doesn't hurt much. (Not to brag, but my usual bend-ability is about 130. OK, that's bragging, sorry. He's a really really good surgeon.)
The orthopedic surgeon's office called the other day, and I will be in to see him in the next couple of weeks.
Like 2Trees says, this is the disease that keeps on giving: excitement, places to go, people to see, vocabulary, and new experiences.
Next: The Ortho. Stay tuned.

Hi Seenie, haven't had one of those YET, but seems like I am getting everything else. Hope you are feeling better real soon.

Oh Seenie...so sorry that this has been such a horrible thing!!! I can't imagine what kind of pain you must have in your leg....walking must be excruciating!!! I am thankful that my legs are not THAT painful, (just the backs of the heels)...the fingers....well....that's another story. I put some updated pictures on my page, as I keep track of the swelling for my Rheumy, and they are the worst they have ever been, after 3 months of Sulfa, and 4 weeks of MTX!!! I think I want to chop them all off now!!!

Take Care,
Dani

LOL, I'm on MTX, so no bourbon for me, Rich! (But it's a great idea ...) Like I say, PsA is a vandal and a thief. It has stolen my wine and my gin and tonic. Sorry, I'm wrong: only the gin, not the tonic. Small mercies, y'know!

Seenie


Rich T said:

I know you are a lover of good wines but your leg sounds like you might need bourbon and ALOT of it.

Yep, a horrible thing. It was excruciating, but not any more. It's not as though you (or others on this board) are a stranger to pain, though!

Hang in there, take care, and thanks for the commiseration.

Seenie

dani7865 said:

Oh Seenie...so sorry that this has been such a horrible thing!!! I can't imagine what kind of pain you must have in your leg....walking must be excruciating!!! I am thankful that my legs are not THAT painful, (just the backs of the heels)...the fingers....well....that's another story. I put some updated pictures on my page, as I keep track of the swelling for my Rheumy, and they are the worst they have ever been, after 3 months of Sulfa, and 4 weeks of MTX!!! I think I want to chop them all off now!!!

Take Care,
Dani

how is the knee?hmmmI just read back. Ok a bit better that is good. Tkrlady yes MTX is a good drug. Works wonders for me.