No Medication For My PsA Due To Complications

I was just released last week after spending another 10 days in the hospital for the same ole stuff that has been happening since early this summer ( lung congestion, high heart rate, and infection). Prior to being admitted my family doc put me on steroid infusions 4x daily for 5 days as an outpatient and to see him in 2 days. When I went to see him 2 days later, he admitted me because I had a fever of 103.2 and my heart rate was 136. I am so used to feeling miserable, I had just taken it in stride and didn't realize how sick I was. My family doc called in an Internal Medicine Specialist to consult with on my case and when he came to see me, he told me I was presenting similar symptoms as I had 4 years earlier when I was diagnosed with H1N1 (same doc I had 4 years ago during that time). I was put in isolation and there began a battery of tests.

Once the blood work was completed I was put on Avelox, another antibiotic (cant remember the name) and steroids through the IV (had been completely off the steroids since September due to inflammation of the liver). Orally, I was on, Tamiflu, Ativan, Calcium, Vitamin D, Diamicron, Upiphyl, Flovent (2puffs 2x daily), Mask Treatment 4x Daily, Tecta, Tiazac XC and Zopiclone. My blood tests and swabs started coming back and was negative for the majority of it with the an exception of a high WBC.

On day 7 I awoke to a lot of swelling in my legs, feet and abdomen. An ultrasound of my legs showed no blockages and my blood work came back good. I was started on Lasix through the IV. I had put on 24.5lbs! The doctors didn`t know what caused the fluid retention and on day 10 I was well enough to go home. It was during my discharge conversation with my doctor that he told me not to take my plaquenil until I heard from my PsA doctor, when I questioned him as to why not, he said I needed to have my immune system and not to take anything that will suppress it. He said he will be sending her a letter about my condition and she will contact me.

So after this long winded story, here is my question: I feel like my current condition is due to one of two things, 1. Damage that was done from the H1N1 Virus, because prior to that I was never sick nor had any of these issues, but did have them after that virus and have gotten worse and much more frequent in this past year. 2. Is it possible this could be from PsA? A lot of my issues seem to have a lot to do with inflammation. Could it be a combination of both 1 and 2?

On top of everything I have gone though my PsA has been really acting up in places that I have never had any trouble, my neck and lower back, plus my regular pain is getting out of control and I don't even know if I can take anything for it because I am on so much meds as it is. The worst feeling I have is that of being excessively tired and worn out. Its one thing for my body to feel that way but its a new thing for my head to feel the same way. Is there anyone else out there going through anything similar to me?

Every disease virus etc causes inflammation. There is a huge backlash in symptoms of PsA when coming off steroids Usually its skin (psoriasis) but there is also a chicken and egg relationship. FWIW our hospitals here are full of folks with your symptoms. They generally asthmatic of course bur we are coming off a nasty fire season as well. What ever the bugs are they are nasty ones. The student health service is working overtime...........

Thanks Lamb, hopefully you are right and its just a bug that my doctors and I can get sorted out

tntlamb said:

Every disease virus etc causes inflammation. There is a huge backlash in symptoms of PsA when coming off steroids Usually its skin (psoriasis) but there is also a chicken and egg relationship. FWIW our hospitals here are full of folks with your symptoms. They generally asthmatic of course bur we are coming off a nasty fire season as well. What ever the bugs are they are nasty ones. The student health service is working overtime...........

Laura, you are right about the curative sleep, its all I seem to do lately and I am feeling better for it. I am very fortunate to be blessed with a compassionate and understanding family, they are not used to seeing me down and out, so they have been quite attentive to me this summer and fall. I hope you feel better and enjoy the time you are taking for yourself, its well deserved

Laura E D said:

Dear Easternlady,

I am sorry that I have no answer to or words of wisdom regarding questions 1 and 2. What I am finding is that there are times that I need to cultivate the art of convalescing, which is very different from generally managing the ups and downs of PsA. And very much about maximising the potential to heal my body and mind.

I similarly hadn't realised just how unwell I had become as I am used to feeling pretty poorly and plodding along anyway. Right now, your body may be trying to tell you something with the excessive tiredness. I know that mine has needed loads of curative sleep, with plenty of the proverbial chicken soup. And I've not just allowed it that, I made it the priority.

This is a lot for you to be going through and I wish you a peaceful and well managed recovery 8><8