I glad I’m not thre only one with top the foot pain. Rhumey said that the pain isn’t from PsA. Anyways, my hip was killing me for months. Shortly before I went on vacation, my hands starting killing me. Couldn’t open a bag of peanuts on the plane.
You are not crazy! It is fascinating to see all of the responses confirming that you are not crazy - nor am I! I joke that every day is a new day and it is always a surprise to see what hurts - and what doesn't hurt each morning I awake. I posted a couple weeks ago that I started having horrid jaw locking. Lasted three weeks. now - poof - seldom does it now. What have i done differently? nothing. awesome. how odd but life goes on! So every day is a surprise. I also posted a few months back that the doctor added Fibromyalgia to my list of ailments. That too moves flows and is also a surprise as to what hurts and doesn't hurt. So in summary you are not crazy. I try to get thru the days when pain and fatigue is worse - i am thankful when I awake and there is little pain/fatigue. As corny as it sounds, I really do take one day at a time.
Wow, musical joints is what I would call it too! It's so weird! I was just describing my PsA like this earlier!!
Could you explain this more? How come WE can't fall asleep in any position like everyone else? What causes this? How come my husband can have bad posture and not suffer the same as I do?
I know what you mean because I did PT too and I had all those Do's and Dont's and they really did focus everything on my posture.... my knee pain though they didn't focus on posture but, instead they had me do strength training and squats and ride the bicycle. My favorite was the Penguin walk with a resistance band wraped around my ankles and I had to walk across the entire room. I was also sent to get Orthopedic Inserts in my shoes and now I always buy good shoes with support for walking.
tntlamb said:
The knee is easy to explain....
Stand on Wii balance board or look at your shoes. We have terrible posture (usually form pain) we finally compensate for the pain taking stress off the joint just in time to screw up the other one. Seriously once i went to work on good posture with the help of my PT and the Wii board my knee problems cleared up..... if I follow my shoulder "rules" (long list of exercises, do's, don'ts how to sleep carry etc) they don't bother me at all. Fall alseep in the wrong position, and I'm screwed.
I can relate to you completely. It can move from my knees to my hands to my neck then to my tendons. I never know what my pain is going to be like from one day to the next. " oh what fresh hell is this" has become my most popular phrase.
I think we all have the same issues with this “musical joint” syndrome. I feel so sorry for my hubby who has to hear this all the time. He is however, so very wonderful. He cooks cleans and waits on me hand and foot on my bad days. God sent him to me! I know in my heart he did.
I feel the same about my wife, she is the most amazing woman with all she does for me.
Candi Crivea said:
I think we all have the same issues with this “musical joint” syndrome. I feel so sorry for my hubby who has to hear this all the time. He is however, so very wonderful. He cooks cleans and waits on me hand and foot on my bad days. God sent him to me! I know in my heart he did.
All the time! I just saw my doctor today and we talked about this! My hips were sore for 3 or 4 days and then it went to my shoulders and neck. During the same time my baby finger on my right hand was sore and has been for over three months now. Wrists were sore then knees and it keeps moving from joint to joint.
I had asked my doctor about this a while back. She basically said that when it's musical joints, she doesn't worry too much about damage. But when pain and/or inflammation settle into a joint, this is when she is more concerned. I'm not quite sure if it made me feel happy, but it at least made sense.
I will let you know what happens when I go to my first appointment to see a Rheumatologist. My doctor diagnosed me with PsA due to all the symptoms and I have been waiting for a long time for this. I just wonder because even though for me it bounces around, it does bounce around to a lot of the same joints repeatedly.
Stoney said:
I had asked my doctor about this a while back. She basically said that when it's musical joints, she doesn't worry too much about damage. But when pain and/or inflammation settle into a joint, this is when she is more concerned. I'm not quite sure if it made me feel happy, but it at least made sense.
Makes sense Stoney. The baby finger is always sore and has a lump on the side. I was wishing the MTX would settle it down but it hasn’t. I haven’t had a bad flare in weeks but continuous pain in that one finger and roaming joint pain in various other joints that lasts for three or four days and goes to other joints. I must say I’ve never had this much overall pain before starting the MTX. Is it possible the MTX is making it worse or is it the PSA progressing? This is a question my doctor can’t answer so I have to wait until October when I see my rheumy.
Stoney said:
I had asked my doctor about this a while back. She basically said that when it’s musical joints, she doesn’t worry too much about damage. But when pain and/or inflammation settle into a joint, this is when she is more concerned. I’m not quite sure if it made me feel happy, but it at least made sense.
Hi
I've never had a cortisone shot and I'm wondering if it helps with the pain and mobility. My main pain joints are knees and hips. Sometimes I wonder if I'll ever walk again. It's been 8 months since I've been able to walk more than a block. I'm definitely getting some relief from SSZ. Any thoughts?
JW said:
I've been having the same thing, and it's severe to the point of difficulty walking and even sleeping at times. I'm having a lot of pain in my SI joints, but my right leg is especially bad. Not so much the joint itself .. possibly tendons, ligament/muscle etc from my buttocks right down to my calf, even into my foot when it's really bad. I'm also having similar pain in my shoulders, tingling in my hands, etc. It even affects my neck at times. My Rheum is sending me for an MRI - he's wondering if it's Enthesitis or Ankylosing Spondilitis. He hit my rt. shoulder with cortizone a few weeks back but wants the MRI before giving me cortisone in my Hips etc. He says the MRI will tell him where the inflammation is.
Not only is this scaring the crap out of me, it's extremely painful as many of you know all too well. I've even missed work over this, and I'm only able to work part time. Yes, I'm really scared, wondering what's going to happen next :(
I’ve had a few cortisone shots in my hip when I had what was diagnosed as bursitis and a couple in my shoulder for rotator cuff tendinitis. Every shot worked for me however I’ve heard some have not had success. I’d do it again if I was in pain for days with no relief. I understand that you can only have so many as they weaken the tendon however they work for me :-). The one time my shoulder was almost frozen shoulder. I lost the use of my arm for 6 weeks and had to go to therapy to use it again. I had severed the end of a finger at work and from pulling my arm back quick(finger was caught in a tie up line) I injured my rotator cuff.
Yes, I have a similar issue. One area can flare up and keep me in agony and then it seems to switch to another area overnight. It's very weird but I have come to expect it. About 4 days ago, I had the worse day ever with regard to pain, the following day I had almost no pain. Now it's going back again and getting worse. I guess it's a bit of a battle between the PsA and the meds. I just started on another medication ( to add to the list ) so now I'm waiting for that to kick in. It can't happen soon enough for me. I know how you feel.
Went from my hips to shoulders and neck…this neck thing makes me even more naustious! Thinking of taking a Celebrex to take the edge off. The daily aches are now starting to get to me…more bad days then good 
I find this interesting because Celebrex take up to 2 weeks to even start working with some patients. I have read in other forums that some people don't even feel the affects for 6-8 weeks as well. Everyone is different. Yet when I was on the Celebrex website it said some patients can find relief within 60 mins. It's amazing how our bodies all respond differently. I never felt a thing from it but, I was only on it for 4 days. I gave the rest of my bottle of pills to my stepdad who definitely has knee pain and he took it for 2 weeks and felt nothing. But I do know people who swear by it and find great relief from it.
TaraLynn said:
Went from my hips to shoulders and neck....this neck thing makes me even more naustious! Thinking of taking a Celebrex to take the edge off. The daily aches are now starting to get to me...more bad days then good :-(
Yes I had a cortisone shot one time. I woke up and my shoulder was locked up too! Your situation though was much worse than what happened to me :( ouch!! I just overused my arm and when I went to sleep it tightened up severely. I also did PT for it to unwind.
TaraLynn said:
I've had a few cortisone shots in my hip when I had what was diagnosed as bursitis and a couple in my shoulder for rotator cuff tendinitis. Every shot worked for me however I've heard some have not had success. I'd do it again if I was in pain for days with no relief. I understand that you can only have so many as they weaken the tendon however they work for me :-). The one time my shoulder was almost frozen shoulder. I lost the use of my arm for 6 weeks and had to go to therapy to use it again. I had severed the end of a finger at work and from pulling my arm back quick(finger was caught in a tie up line) I injured my rotator cuff.
I’ve heard that from others however I’ve been using Celebrex only when needed for years and unless I’m not quick enough or the flare is huge it works. I’m happy for that because I’ve been very cautious of using anything to save my stomach. My flares started in my late 20’s early 30’s and I guess I was in some sort of remission because I was only flaring a few times a year. For me is a flare that the joint is so bad it feels like your heart is beating in the joint from the pain and I literally can’t manage with out other stronger drugs. My sister is now having issues like I did in my younger years and has started using Celebrex like me. For me Celebrex is works when I need it 
Sorry if I have any typos in typing on my iPhone and it’s brutal. Getting a lap top tomorrow
I don’t know if you are aware, but you can also have the steroid injections in your neck. It depends on where your pain is coming from, of course. You would need to see an Ortho or pain management specialist to get one, but they can be just about life-saving.
On the less invasive end of the treatment spectrum, your doctor would probably try oral steroids and physical therapy before an injection.
Call your doc and see if you can’t get in early next week. You might ask for something to take for nausea when you go as well as having your neck evaluated. Celebrex may work, but there are other options that provide longer term relief.
If your pain is related to muscle spasms flexeril, skelaxin or other skeletal muscle relaxants; physical therapy; massage or acupuncture can help immensely.
Certain inflammation in the C spine can cause nerve impingement and might escalate to damage to those nerves. That’s why I suggest a call to the doctor if this is an acute issue for you.
TaraLynn said:
Went from my hips to shoulders and neck…this neck thing makes me even more naustious! Thinking of taking a Celebrex to take the edge off. The daily aches are now starting to get to me…more bad days then good
