Mxt day tomorrow. I am a little scared to start. Sounds like could be bad or good. Was supposed to start last week, but the flu in my family has made me decide to wait. Guess i need to suck it up and take it and find out what happens. Don't have any joint damage as of yet, want to try and keep it that waUs All!y. This site has opened my eyes to what having PsA is all about. NOT looking forward to this journey. Time to accept it and move on.......God Bless
Praying for you that your mtx goes well with little to no side effects.
Just remember you are not thr disease you are a person who happens to have
PsA. It does not have you. Not always easy to remember as we travel this journey
but, there is the support in family, friends and this website. Have faith.
Hey! I am in the same boat as you. No damage yet. I just found…well I guess almost 2 months ago. How did it start for you if u don’t mind me asking. Its interesting to compare and contrast and just hear someone else’s “story” so to speak. I have had pain in my tendons for a year and a few months and just started having joint pain this past November. Sigh! I have chosen to not do any meds at this point. And I made my decision based on the fact that I had no damage. But sometimes I re think my decision. I don’t know if I made the right one etc. So I guess also I was wondering-how did you go about making your decision to start meds. Did your dr push for it. My dr said he was behind me whatever I decided. But honestly if he had led me in the meds way-i probably would have budged. But he knew I wasn’t so sure and since I didn’t have damage-well he left it up to me. Thanks. And good luck.
Karyn
I believe mine started about 2 yrs. ago. Was having very bad back pain. was treated for bulging disk, might of had one as it took some of pain away. Went to my MD back in May. Started with an MRI-blood work(check for RA) my dad had this and one sister. I have 2 sisters and my mother with MS. I am only one with psoriasis. When test failed to show anything else my MD said PsA. Since we don't have insurance my MD was treating with anti-infammitory's and pain pills(tramodole). Diagnosed about 2 monthes ago. My joints (all) and spine, plus bottom of right foot have continued to get worse. My husband happened to run into a pharmacist in nearby town who also has this. Found out about mxt and being cheaper. He also found out joint damage could possibly be prevented . We decided it would be a good idea to stop damage if we could. MD set me up with a rhummy doc and hear we are, ready( i think) for the mxt journey. God is the only one who knows where it will end. Trusting in Him! Blessings to All!
mybabykk said:
karynailes1984 said:Hey! I am in the same boat as you. No damage yet. I just found...well I guess almost 2 months ago. How did it start for you if u don't mind me asking. Its interesting to compare and contrast and just hear someone else's "story" so to speak. I have had pain in my tendons for a year and a few months and just started having joint pain this past November. Sigh! I have chosen to not do any meds at this point. And I made my decision based on the fact that I had no damage. But sometimes I re think my decision. I don't know if I made the right one etc. So I guess also I was wondering-how did you go about making your decision to start meds. Did your dr push for it. My dr said he was behind me whatever I decided. But honestly if he had led me in the meds way-i probably would have budged. But he knew I wasn't so sure and since I didn't have damage-well he left it up to me. Thanks. And good luck.
Karyn
Yes God and only Him know where this will go. And I trust in His plan for me. The whole autoimmune thing in families is crazy. I have two Aunts with MS. Very advanced stages. And a cousin with lyme disease. I am also the only one with Psoriasis. And mine is in all my joints off and on and spine too. Spine just starting stiffness and pain thing about a month ago. I get the whole redness and swelling in my fingers every few days. And waking at night is scary sometimes…first joint sign was in my mcp joint. Swelled A LOT and had lots of pain. Prompted an ER visit and they referred me right away to a rheumatologist. With my family history and mine. I’ve had psoriasis since 7. anyways. I’m just trying to find my way. We have great ins. I looked into it and a biologic would run me about 50-60 (give or take I’m sure) a month. I’m just scared. I want to have more kids. Etc… Thanks for sharing. And good luck again.
I started MTX before they knew for certain that there was damage. It did nothing for me, either good or bad. I was bracing for the "hit" of side effects and ... nothing at all. Oh, maybe a bit tired, but that could have been my imagination. Yes, just take it and hope for the best.
Seenie
I've been taking it for 3 weeks now and I haven't had any problems. I was horribly worried about the side effects and expected the worst. The first couple of times it took me about a day and a 1/2 to recover; but I think it had more to do with taking anti-nausea medication (expecting to be nauseous). The 2nd two times I took it, I went without that and it was much better.
I take it all at bedtime so I sleep off the side-effects and I drink plenty of water. I've also been taking folic acid (prescribed), which is supposed to help minimize some of the side effects. I don't know if it's helping or not, but I haven't noticed any hair loss (other than the usual) or sores in my mouth. I do get a tiny bit of nausea and a little tiny bit of dizziness, but nothing to worry about. I'm taking it with Simponi and my pain is almost completely gone (still working on the fatigue, that hasn't gone yet).
Good luck!
Well decided to start tonight, in case of nausea. First dose down… Thanks for all the encouragement and support. Praying this will work quickly and no or few side effects. You guys are great! Thanks.
I have been on it for 3 months. For me the side effects get less and less as the weeks go past. When they put dosage up I feel yuck again, and then get used to it again. Taking the folate on days when you dont take the MTX is a good idea. I haven't had any trouble healing from infections while on it so far either. Maybe you will be just fine. I hope so. Good luck. Every body's body is different. Lots of people get a complete remission from this disease. I think we are all hoping for that, but if we are on here it hasn't happened yet. If it had we would be out doing stuff, and loving and living our lives to the fullest. I think it is important to keep that in perspective. We are not a good sample group. Stay positive. Hope this is helpful xo
I have been on mtx for *eight weeks now, except for tiredness I have seen no major side effects. My condition has improved and I have now weaned myself off the predisone and can walk okay. I see my specialist for the first time next week. I have lots of questions for him. I hope the mtx works for you.
Well today went fairly well. Tiredness, nausea, a little dizziness. Not much different than any other day; except the nausea and being slightly dizzy. Now just waiting to see if the MTX works for pain and stopping joint damage. Hope everyone is doing great.
Hurray! One dose down ... and here's hoping mtx puts the brakes on the nasty disease process. Keeping my fingers crossed for you!
Seenie.
mybabykk said:
Well today went fairly well. Tiredness, nausea, a little dizziness. Not much different than any other day; except the nausea and being slightly dizzy. Now just waiting to see if the MTX works for pain and stopping joint damage. Hope everyone is doing great.
Thanks Seenie! I work part time and just got home. Went fairly well. Will be a lot better when my foot pain goes away. Working as a janitor for library part time (3nights a wk.) means on feet for 3 hrs. Well night all. God Bless Everyone of Us!!!!!
It didn’t start working for me until week six. Then I started to feel okay again and the pain in my feet reduced considerably.
Well I have now taken my second dose of mtx on Monday night. Had headache and tired on Tues., Wed. was feeling really good until later in the day then aching and really tired. Guess I need to learn to pace myself in doing things. Today I'm feeling really good. If I think about it I guess i do still have some pain but it is so little that I don't seem to notice it. Does that make sense? I am also sleeping alittle better since mtx. Not sure if anyone else has reacted this fast to the meds or not. I also take tylenol and tramadol for pain but not all the time. Did take it lastnight so I could go to work. My foot pain is also a lot better. God still is in control. Blessings Everyone.