Since I am the only person I know in 'real life' (as opposed to internet life) who has PsA, I have a lot of questions concerning the disease. Are there any events of any type that bring people with PsA together in one place to discuss research, therapies or anything that could help people with the disease?
The National Psoriasis Foundation at psoriasis.org is a great starting point in the US.
20th May is World Auto-Immune Arthritis day - Look it up. Although it is not PsA specific, I do believe it to be a worthy cause .
Look up the webcasts a the NPF website. http://psoriasis.org/events/educational/webcasts
Here is something:
https://psoriasis.org/events/educational/more-than-skin-deep
This you probably wouldn't get much out of. It's for scientists.
Maybe we should start our own event. . . Have speakers who have studied and worked with people with PsA. Yoga sessions specifically for people who have limited mobility. Meet others with the disease.
Or it might be easier to get involved with the NPF and work with them to organize a conference around one of their "more than skin deep" events?
Spinning Diva~ said:
Maybe we should start our own event. . . Have speakers who have studied and worked with people with PsA. Yoga sessions specifically for people who have limited mobility. Meet others with the disease.