Saw my rheumy yesterday and as I suspected he is increasing my dosage from 400 up to 800 and having me get them every 6 weeks instead of every 8. This is a concern but again the alternative out weighs my concerns. Also waiting on ex-ray results of lower back and neck. I must of had at least 20 total ex-rays taken. Will keep everyone posted. Hugs to all!!
I am considering asking my Rheumy about increasing my dosage amount or shortening the length of time between doses. I feel good for about 4 weeks, and then it seems to "wear off", and I am dying until my next infusion. I am also still taking MTX (8 pills per week), but there's been no discussion about increasing that dosage.
I HAVE PSA AND COSTOCHONDRITIS, BOTH AFECTS MY CHEST CAVITY! I'M ONLY ON MOTRIN & VIOCODIN AS I CAN'T TAKE ANYTHING THAT AFFECTS MY LIVER! MOTRIN DOES IS I TAKE IT TOO MUCH! RIGHT NOW I'M OKAY JUST CHRONIC PAIN, BUT AS IT STARTS GETTING COLD, MY PAIN GETS UNBERABLE!
I’m taking remicade too and I definitely need to do more. I am having an awful time and I am 4 weeks out until my next infusion. I would love to know how you improve or feel after. I hope everything is going well.
thanks for sharing with the group!
I know it's been awhile since your blog post but I wanted to check in with you and see how yor doing? I get 400mg Remicade every 4 weeks and I take 8 methotrexate weekly. I'm struggling to fell well at this dose and have an appt next week with my Dr and will be asking her to up the mgs for my next infusion. Hoping your doing well!