Don’t worry yet. I’m sure you’ve heard over and over again that it can take time for the bios to work. It’s not really reassuring when you just want to feel better, but when they do finally work it’s a wonderful thing. Remember to be patient and take care of you.
danijsj32 said:
I too have this issue but I did not realize it was all part of this…sometimes I get what is called brain farts as well…I all that it was because I am 40 and getting up in age…I just started the bilogics so I am praying it helps so far it has not
Yes, all the time. Brain fog. I will loose my train of thought mid sentence. I get so very mad. I love conversation, being sarcastic and witty. This PsA has killed that for me. I try to say as little as possible.
That happens to me too amielynn38. I love conversations that pop and crackle. When the brain fog, fatigue and pain are too much I sit there like a dullard not understanding the banter until it is too late to add something. When my meds are working well for me my wit suddenly returns and I let off a good one! And it feels like old homeweek and I am back to being myself. So wonderful!
For the past year I have realized that I have word retrieval problems fairly frequently -- people will joke that it sounds like I've been drinking. But i only just started taking meds (prednisone) so I can't blame it on that. It never occurred to me that it could be related to PsA...
Lynn, I’ll bet your word retrieval problems will go away while you’re on prednisone. My mind was so clear while on that stuff! I wish I could take it all the time, but it’s better not to.
This was the very first symptom to scream at me that there was something seriously wrong with me. So I did the research to find out why it happens and this is what I found out. I have lived with my arthritis for so many years ( over forty) that it took a stoke like episode to knock me on my butt and send me searching. Usually the first diagnosis we all get is a fibromyalgia one. This is because our diseases mimic one another in the spinal column. I have been to three neurologists, two reumatologists and a dermy in order to be completely diagnosed. It took three years and these people are some of the best in the field. So here it is......
Your spinal column swells and the tissue surrounding it swells and you can't talk because things really aren't connecting correctly. This happens at the base of your neck and continues into your skull. The world health organization has now called for this symptom and symptoms like it to be considered when a person files for disability compensation. It has a name. It is titled reasonable consideration and refers to this issue specifically! So now you know ! :) I hope it helps. I know it did for me. I stopped calling myself crazylady the day I read this article.I am thankful I am one of Ben's friends.
that sounds like neuropathy. Many of us experience that in our hands and feet. The underlying cause is usually unchecked inflammation. Better disease management should help and there are meds you can take (neurontin, for example) to help with the symptoms. I take it at bedtime so the tingling and shooting pains doesn't keep me awake or wake me up.
Lyndsey said:
Hi, somewhat related question...does this swelling around nerves also create nerve sensations such as buzzing, tingling, pins/needles, etc.?
Right, that’s what I suspected. However, none of my doctors seemed to confirm my suspicion. I will start Remicade soon and if that doesn’t help significantly then I will talk to my doctor about neurontin. Thank you for all of the good information.
I had this at my worst, I could feel the word I wanted to say almost on the tip of my tongue and I would come up with something similar instead. I couldn't think or speak as quickly as I wanted to (and was used to doing not long before). This came on in a relatively short period of time. My disease is pretty well controlled now and I'm not struggling with it right now. I'm not sure if it was the swelling or the fatigue. I mentioned it to my rheumy and she asked if early dementia ran in my family. Um, no, it doesn't and I was 36! So, I don't have dementia but I did have complete brain fog.
I often have had difficulty finding the right words or sometimes i say words that i didn't mean to. It's not that bad but it did make me feel a bit concerned, especially as i'm an actress and it's a big part of my job. It makes me feel a bit stupid sometimes. But is that really related to PsA? What causes it?
Sorry, only just read notanymore's comment about the swollen tissue around the spine.
Rosie said:
I often have had difficulty finding the right words or sometimes i say words that i didn't mean to. It's not that bad but it did make me feel a bit concerned, especially as i'm an actress and it's a big part of my job. It makes me feel a bit stupid sometimes. But is that really related to PsA? What causes it?
I'm a 29 year old guy in Canada with PsA. I'm an actor at my local community theatre and went to school for acting. I've had trouble speaking, or making sense also. I've been reading everyone's reply's and It's bring back memories. Like some of you, there are good days and bad days, On good days I can articulate my thoughts so clearly that I'm using vocabulary I've never heard before. The bad days however are just one run on sentence after another with hardly a clear idea. Thankfully most of the people I work with know some of my tells and will just let me ramble for a bit before jumping to help me find what my point was. I'm not sure I've had headaches when these days are present, but I do know it's usually tied into how tired and/or stressed I am. I've given up feeling embarrassed about it, and have developed a large defense mechanism of humor to shrug it off. My heart goes out to you all though. Tough journeys, tough steps, beautiful Family and friends.
I have a similar symptom. I find it hard to find words sometimes or I will just say the wrong word altogether. I have had my thyroid checked several times as that is typically indicative of a thyroid issue. I chalk it up to a side effect of the extreme fatigue that comes along with this. I sleep like a rock but never feel like I have had enough. I really think that is somehow linked to my issues with word finding somehow.
