I have pretty aggressive PsA. Before I started Remicade infusions last year, I had scant signs of psoriasis. Now, it has emerged heavily on palms, legs and feet. Very frustrating, painful and annoying. I've heard others have had similar experiences with Remicade.
The psoriasis flares add insult to injury, it feels.
I'm interested in any feedback on coping mechanisms, folk remedies and any experiences that might be similar. I'm stopping the Remicade since it has was effective at first, but then a mixed bag -- especially given the skin flares. I'm hoping the skin anger calms as I "wash out" as time moves ahead but it isn't showing any signs of calming.
I sure hate to hear that for you. I too had PsA with hardly no signs of Psoriasis for many years. Maybe 2 or 3 patches here and there that would come and go. Now the PsA has decided to leave me be for the time being but it left behind the nasty skin. I just started Enbrel on Wednesday in hopes of controlling it. I don't really have much advice. I use Clobesol cream which is a prescription topical, OTC Psoriasin, and Glycerin mixed with witch hazel. None of these things make a dramatic difference for me but they all help a little. But it's very messy and time consuming so not very practical to use every day.
Sunlight of course helps a little. In the summer I wear pants of course to cover up my legs. I do wear short sleeve shirts and try to cover up my Psoriasis with cover up stuff. Dermablend is the best one I've used so far. If your able to get your skin flat (as in not red and raised patches) it works pretty good. People can still tell something is wrong but you'll get more of a "hey, what that on your arms" response instead of "OMG, what's the matter with you!!" response.
I hate P. It's humiliating to say the least. And beings I'm prone to a short temper, it's dangerous for me. I already sent one fellow to the ER with a broken jaw last year at Kings Island amusement park. Him and his friends thought it would be funny to make some loud comments while we were waiting in line for a ride. I walked up and knocked him out with one hard punch to the jaw. I was arrested but charges were later dropped. The kid sued but lost the law suit. Judge saying all parties seemed equally responsible.
Good to know. I'll have to look into the light therapy, etc. I appreciate the post. Thanks!
Lovemydogs said:
I've had psoriasis for almost 30 years and 2 years ago was dx with PsA so I've delt with the nastiness of people saying what is that and treating me like a lepper. Mine exists mostly on arms and legs although I did have it on my scalp and ears pretty bad. I took cyclosporine for over 10 years...it was my magical drug but my kidney blood work was slowly increasing so we stopped that treatment. I take humira now which I think does nothing for the P but it keeps the PsA inflammation down. So my alternative is light therapy at my derms office. It helps a lot. I also use taclonex for breakthru patches. Make sure to use a really good moisture and often! I always say if I could, I'd have a vat with lotion in it and soak every day lol.