Hi all… im new here (obviously) I’ve been dealing with constant pain and swelling of various forms for the last 3+ years. The RA Dr still has not nailed down specifically what I have. He says for sure PsA but theres more. They have tossed around RA, Fibro, Angylosing Spondylitis and a few others. I was first symptomatic when I was 35 as I am writing this I am 39. Pretty much still a lab rat as they havent found any meds that truly work. I get by on the day to day with the help of many pain pills that most of the time takes the edge off enough to function.
Ive tried to keep up with the things I enjoyed but as time went by I just wasnt able to, im not even really able to get a good nights sleep due to being uncomfortable.
Ill cut this intro off now, see yall around the forums!
Hey. I was diagnosed with JPsA when I was 8. I’m now 11. It’s been hard being a preteen that’s not like everyone else. I haven’t tried every med in the book but about to probably start a biologic. I just wanted to find someone else like me because I feel really lonely.
Oh sweetheart - don’t be lonely. Us older people who are so crabby sometimes on here are just there for you too. Honest we are. So to help us help you, tell us more about yourself. Where does it hurt? Does anything help so far? What makes you laugh? It must have been so tough to have this given you’re a gymnast. How do your family help you? It seems like a nice big family as well.
You might find though when you start the biologic than things do improve. When is it supposed to happen for you?
Hey thanks for the support. So far I’ve had 5 flared up joints each with a 2 or so month time. right now its my back which sucks. Also, I go to the ruemotoligist next Wednesday. Also, so far no pain meds help and the ones that do jack up my stomach. Because of my big family its been a little harder because there is always a lot of commotion all around me. I really like watching Grey’s Anatomy and Once Upon A Time. I’ve always been told I have an old soul. Also, because I’m the oldest of four, I’m also the “mother hen”. At least that’s what my mom has always called me. I’ve NEVER met another child with arthritis either.
I see tntlamb and sceenie (super people) have got you covered on your post for emotional support with even homework to do! Hope all the links etc are now working for you and that you get to chat with another child just like you. Best of luck seeing your rheumy on Wednesday. I’ve to go the fracture clinic this morning because stupid me fractured my pelvis a few ago so they need to see if it’s healing. I’ve been crutches too as a result. And I don’t know about you but I find having to use crutches makes everything that bit just harder!
Hey yea sorry about ur pelvis and yea I understand about the crutches. I
had to be on them for 2 months cause I got an inch and a half splinter in
my foot.
@Stella82415, I certainly hope you you had a good visit with your Dr yesterday. To support what Poo_therapy has said you are certainly not alone, not here. I am new and the support I have received on here is great. People care and truly understand.
We are here for you
@Poo_therapy, sorry to hear about the crutches. I think I would look like a newborn giraffe if I had to manage getting around on those.
Sorry to hear of your troubles. You’re description of the pain and arthritis are nearly the same as mine. Had joint pain for years. Then my spinal stenosis became so bad that I had to have major back surgery. Damaged nerves called for pain meds. If that wasn’t enough my arthritis just seemed to explode about 6 months after the surgery.
Going to have a spinal cord stimulator put in and hopefully cut down on the meds. Hate taking them.
Hi @Carlos! My mom had looked into the spinal cord stimulator and chose not to have it put in because there were some limitations that were problematic for her lifestyle. That said, I’ve heard great things. It’s just important to know what the potential limitations are before you get it put it.
We’ve discussed some of the issues. Going in next week to consult. There is a temporary unit that is utilized as a trial before it’s buried in my body.
The floors in my room are real hardwood and I was trying to put on my shoes
with tights on and it just pulled it up and went into my foot. They
literally had to cut out a piece of my foot to get it out.
That sounds awful! Really nobody’s fault, though, was it? It’s perfectly normal to put your shoes on with tights on.
Was that before or after PsA decided to move in and be your roomie?
Seenie
That was after. I had already had PsA for 3 months
from Phoenix, AZ
Seenie
July 17
That sounds awful! Really nobody’s fault, though, was it? It’s perfectly normal to put your shoes on with tights on.
Was that before or after PsA decided to move in and be your roomie?
Seenie
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In Reply To
Stella82415
July 17
The floors in my room are real hardwood and I was trying to put on my shoes
with tights on and it just pulled it up and went into my foot. They
literally had to cut out a piece of my foot to get it out.
welcome!
I just wanted to find someone else like me because I feel really lonely.
I’ll soon be catching you up!
That sounds awful! Really nobody’s fault, though, was it? It’s perfectly normal to put your shoes on with tights on.