I have just recently been diagnosed with PsA though it began about 3 months ago. It all stated in just my wrists and fingers but has moved at a rapid pace. Now it is also in my elbows, knees, ankles and toes, with a couple of my fingers and toes always being swollen, I haven’t been able to straighten one finger for the last 2 months.
I have been coping, at least I thought I was, since I was diagnosed but am now struggling big time. Every week I feel like my body is deteriorating, some days I struggle to even lift my blanket off me in the morning. Every day I live in pain and all I wish for is just one day to feel normal. I’m only 24 years old, and knowing that I have to live with this for the rest of my life scares the crap out of me. I feel embarrassed ehen I can’t do some of the simplest things in life, like opening a door or cutting my food, even walking is a struggle. And it’s not feeling embarrassed as in what people see, but I’m embarrassed of myself.
I’m still to start treatment, which I will on Thursday, and I know then that things should get better but I still can’t help freaking out. I’m currently taking anti-inflamatories and krill oil as well as exercising (swimming, walking and cycling) and starting to eat better.
I just would love to know any advice people could give me and how they first coped when diagnosed and how they are coping now. most importantly I would love to hear of any stories of people who live as normal a life as they can with PsA.