I’ve not had much opportunity to visit LWPsA over the past year for a million reasons, so I finally decided this morning to login and say hello and hope you all can say you’re doing pretty well! My main concern is I hope everyone either avoided COVID or didn’t have a bad case of it. We were super careful. I was lucky to be able to work from home from April 2020 to April 2021. Currently, I’m back at the office, but getting more and more concerned about the COVID variants that are more contagious. With that, I’m wondering if others of you have talked with your rheumy about an extra booster of the vaccine? I heard Dr. Fauci say that people on meds such as biologics aren’t always developing the antibodies to fight COVID. I haven’t read through all the new discussions yet, so maybe this has been a topic.
Otherwise, I’ve been fortunate that Enbrel is still working for me.
My husband and I grew closer while we spent more time alone—away from the family—for a whole year. Our marriage is better than ever because now we’re best friends. Sounds weird that it took 47 years to get there, but it’s sure nice we did.
I’ve had multiple kidney stones and was referred to a urologist. She gave me the option of going into my kidneys to retrieve some of the stones. She didn’t know how many she could retrieve because if they’re in tissue, she wouldn’t be able to take them out. So I opted out of that. I’ve passed about 8 stones over 10 years—most of them very little pain and only 2 being more pain—nothing I couldn’t handle. Also, most of them have been recent—in the past 2 years. I’m wondering if others of you have kidney stones and if they’re somehow related to PsA.
At the moment I can’t think of much else……there are the normal aches and pains but nothing that stops me in my tracks. There is the worry about retiring and not being able to afford Enbrel once I go on Medicare and a supplement. The last I learned was I’d pay an average of $600 a month, and with the cost of the supplement and other medical costs I can’t afford that. But I do want to retire December 31. I’ll need to learn more about Remicade because, as far as I know, it’s my only inexpensive option.
I look forward to catching up on more of the recent topics and knowing how y’all are doing!