I am so happy to find this group... Here is my (daughter's) story...
My 15 year old daughter (active club soccer player) woke up one morning last year and could not walk due to severe pain in her left lower back. This followed no injury or anything unusual that we can think of. After a four day hospital stay and antimflammatory drugs she was diagnosed with sacroillitis. A few months later she was diagnosed by our Rheum with Ankylosing Spondilitis. She is now on methotrexate and humira and getting steadily better, but still not back to her athletic self. I don't know if AS is considered Psoriatic Arth. but your group sounds informative and welcoming. This has been a long, confusing ride for the family-- she has no genetic marker for RA, and no one in the family does. I am troubled by the strong drugs daily.
I guess I (we-- husband, daughter) are in denial still. Why does a 15 year old girl with no genetic history have a typically elderly man's disease? There seem to be so many uncertainies when it comes to rheumatological conditions.
Here is my burning question... if she does have AS, will she be on these strong drugs (humira/methotrexate) for the rest of her life? Or, once the symptoms get better, may she taper back and ultimately not take them at all?