I am just becoming so frustrated. I have been able to deal with the pain until recently. I have reached a point that it is becoming more than my mind can dial down. All the large muscles on my back, ribs, shoulders, and chest hurt! Not a little. They hurt to be pushed on. I will not take more oxy to tamp it down, because it seems to have little effect. I have added Robaxin to the mix and it may help a little. I already take 75mg of Lyric twice a day, and have since Lyrica first came out. I do not take it for pain. I take it for an off-label reason. For some people, it can act as a mood stabilizer and it has for me. Much less side effects that other meds that do that I had tried.
I know more Lyrica is one thing they try for fibro or constant pain when it seems to be nerve related. About 6 years ago, they ran my dose up to the 300mg a day that is usually prescribed for constant pain. It did little other than give me the jitters and mess up my eyesight more. I finally took it back to the 75mg BID. I have added 300mg of Neurontin to my daily meds. I have a script for Neurontin as a PRN because I have some terrible burning nerve pain on the back of a shoulder from my neck being split open twice to work in it. It has always helped with that and an occasionally trigeminal nerve pain that runs up over an ear and onto my scalp in the middle of the night sometimes.
If the Neurontin seems to help, it may definitely indicate that this is nerve based like fibro is suspected to be.
As I have researched fibro, I have read that when the muscles/tissue hurts, people can’t stand to be touched on it. I have reached a point I can barely stand to lay down. When I lay on my back or side, I can feel every wrinkle in the sheet or blanket under me. It hurts and burns.
The burning muscle pain has gotten so bad, I don’t really think about the pain in my shoulders, knees, and hips from the PSA, but it is still there.
I told my wife I suspected I had fibro. At least she was honest and said she didn’t think there was a damn thing they could do about, and she is right,
I have got to come to some kind of understanding with my brain and body, I was already down because I think about how much the PSA has taken away from me. There have been so many things I cannot do anymore that I want to do. I spent an afternoon putting a wire antenna back up for my HAM radio that I had to take down because I had some trees trimmed, That took almost 5 hours and should have taken 2. I took my time and stopped and rested when I needed. It was nothing strenuous, just work. I finally got it done, but paid for it for a week. The only relief I have been able to get for 3 or 4 hours is after I sit in my hot tub for 30 or 45 minutes.
I had told myself that I didn’t care if something I needed to do was going to make hurt for several days, I was just going to do it! But, with this new pain, it is getting impossible to even move. I shuffle when I walk because my pain level is so high. I groan each time I get up and go to the bathroom. I don’t sit anymore, it is more of a controlled fall to the sofa.
I have dealt with the PSA pain for 6 years now because I had to put up with it to survive and keep going. I have never had what feels like full body pain! My wife asked me where I hurt when I woke up this afternoon and she heard me groaning as I sat up. I told her from my hips to the top of my head.
Sorry, everyone, I just need to vent. Any ideas or suggestions would be appreciated!