Hi, I haven’t been on here for a while , I was diagnosed and started humira 09/11, I have since then been diagnosed in feb 12 with me, chronic fatigue, also been put on , cozzar for high blood pressure and cardicor for tachycardia, also on fusemide for fluid retention, anyways I was feeling fine for a while but now I seem to have gone down with severe fatigue my so joint is giving me awful problems, my ankle is killing me when I walk??? I’m getting hot flushes which I never got before, is this part pampas, the elbows, hands , everywhere is bad, I’ve appointment with rhumy on Tuesday, he will give me a few injections and hopefully calm everything Down, phew just wanted to give you all update, can ye let me know about hot flushes ???
Ok just to say diagnosed with Psa in 09/11, my si joint is extremely sore at the moment,sorry about that hate auto correct 
Check your blood pressure and heart rate first. The hot flashes could be related to a heart issue, so make sure you check those things soon! The fatigue could also be related to high blood pressure or an irregular heart rhythm.
Or, it could all be related to a PsA flare, but check your heart stuff first just to be safe!
Hello, you didn’t mention if you are m/f? Or age? I too have gotten hot flashes, I am F/45 and have had irregular menstral cycles. When that happens my flair ups are so BAD! I do believe these signs of menapause and flair ups are combined. I go for a Gyno appt the end of month, hopefully they can help.
For many, the PsA flare does come with chronic fatigue. Did you get dx'd with Epstein Barr virus that causes chronic fatigue, or did your rhuemy say it was from the PsA? I too get the fluid retention, plus night sweats, chills, and low-grade fevers that cause a hot-flash reaction. My hormone levels checked out as normal, so hot flashes due to menopause, or Peri-menopause are ruled out for me. Your rhuemy or regular doc can check your hormone levels to make sure the hot flashes are not from an imbalance or menopause. Fluid retention is part of the game plan too, which can exacerbate high bp, and so can pain. The doc should check your heart and bp too to rule out cardiovascular issues.
I'm in the same boat with all the symptoms you stated. I started Humira, and just took my second dose on Friday. I don't notice any difference yet. Did you notice an improvement with Humira, and if so, how long did it take to kick in?
I was on Enbrel for about 5 months and it stopped having any effect after about 8 weeks.
Hello to All of my friends :)) I am new here and was recently diagnosed with Fibro, IBS-C, Chronic Fatigue Syndrome. I was told by a pain specialist 3 yrs ago, that I had 13 points with Fibro, I denied it and avoided it, because I did not want to be shot up with meds. My entire life, I have been sensitive, with touch, light, cold, heat, skin rashes, hypoglycemia, PMDD, joint pain, muscle aches, all after doing normal activities that my friends would do, but I could not keep up. Now at the age of 45 I am surrendering my pride, and learning to accept my " New Normal". The reason being is that my beautiful daughter 14, is complaining of all the same things. I thank God for going through what I went through my entire life, because, she will not have to feel crazy, or inadequate :)) I am in the process of PsA and my doctor, myself and my wonderful husband, have completed the history field, after the testing came back, negative for ANA and Sedrate. She first said Fibro, CFS, IBS-C. I went to the chiroprator for the first time last Friday, he took exray of neck and back, the results of that were 3rd stage of subluxation in C1-C7, and in my lower back. At this moment I am contiuing the regime that I have found to work for myself. This is just mine, I am not in any way shape or form for anyone to try this or think it is fine for them. For 15 yrs. I have taken , Naproxen off and on, mainly for PMDD.. ( the doctor just perscribed for my daughter ) I found Dramamine to help me with allot of ailments. So during my menstral cycle life time, I relied on Naproxen or Advil, Sometimes Nyquil at night for all over discomfort. Now for the past 2 yrs, do to a total hysterectomy 5 yrs ago and not aloud to take estrogen, I am on Cymbalta 60 mg. ( which I feel is not working as well now :( ) Trazadone for Insomnia. Naproxen every day for pain. Linzess for IBS-C ( wonderful ) and Zantac for stomach due to meds. I have to tell you all the truth for myself and my body. The only medicine that stayed true to me and my body, pre-diagnosis, and post diagnosis. Is Dramamine and Night Time NyQuil. I don't feel withdraw or anything when I don't take for a little while, in fact I only took it when what I know now are flare ups.. which before I thought I had the flu. I have 4 Children and I just always thought I caught something they had. So I am at a complete state of confusion on what to take from the pharmaceutical world, or a chiropractor world. Part of me just wants to stick with what I had to find myself to work, due to so many doctors and others making me think I was crazy. The only thing is my flare ups do last allot longer now that I am 45, and not 20.
I have experienced a great deal of pain, when my hot flashes occur. It seems to happen to me during a flare up and I can't figure out which comes first. They just seem to run together inside my body. I have heart palps, nausea, and great fatigue during these times and I also know my blood sugar drops a great deal. I do at this time eat 7 small times a day, including a protien and a good carb.. ex: Cheese with Fruit. ect. I know Cymbalta helps me with hot flashes and mood swings due to menopause. When hot falshes and low blood sugar are under control, then joints and muscle pains are better. Just sharing my Experience, Strength, and Hope :)))
Grace
I am a 45 year old female and once in a while I have night sweats...not sure if its related to my medications (Remicade and Methotrexate x8, or maybe because I also suffer from panic disorder in addition to PsA) or just my age and hormones. I have been experiencing irregular periods and have a gyno appointment next month so I will bring it up with her. I normally have quite low blood pressure and check it regularly. As for the fatigue....I haven't figured out what to do about that. I swear that's half the battle....being so tired makes me hurt and when I hurt I am tired......a total catch 22, and it I notice it really affects my concentration, especially at work. I just want to sleep all the time which makes me not such a fun person......after being at work for 12 hours, I'd rather nap than go out, and Saturdays and Sundays always require a nap sometime during the day.
I think the fatigue is the worst. It's like hitting a brick wall. I have to stop. I am learning to take power naps though. Sometimes they help.
Suzanne- I had hot flashes the whole time I was on MTX. As soon as I came off it, no more hot flashes. I'm 41yrs old.
Suzanne Hall said:
I am a 45 year old female and once in a while I have night sweats...not sure if its related to my medications (Remicade and Methotrexate x8, or maybe because I also suffer from panic disorder in addition to PsA) or just my age and hormones. I have been experiencing irregular periods and have a gyno appointment next month so I will bring it up with her. I normally have quite low blood pressure and check it regularly. As for the fatigue....I haven't figured out what to do about that. I swear that's half the battle....being so tired makes me hurt and when I hurt I am tired......a total catch 22, and it I notice it really affects my concentration, especially at work. I just want to sleep all the time which makes me not such a fun person......after being at work for 12 hours, I'd rather nap than go out, and Saturdays and Sundays always require a nap sometime during the day.
Awww thanks guys, appreciate all your comments , just to answer some questions some of you had, I am 43 year old female, I am on humira, I noticed a change after a month or so, then went Into denial and came of it for a few months, but did I suffer, I then realised how much it had helped me, the flare I’m in is quite bad at the moment, walking with lot off difficulty, planter fasitis or tendinitis , elbows. Wrists, SI joint very bad, fingers, neck, due humira today and will get kenalog injection of rhumy and some other one, I will be fine for a few weeks and then the same think back again 
, I’d say sweats are from flares as this seems to happen at the same time, I have very irregular periods doc will check hormone levels:( heart rate and blood pressure fine, tablets keeping it under control, also taking zimovane for sleep, anti-inflammatory meds too, I’m sleeping a lot during the day, I’m in bed at 8pm I just can’t help it, oh well it could be a lot worse, have to be greatul for small mercies, I’m also waiting on ivalitity pension since last may, that’s our Irish system for you and still don’t know if I will get it, hmmmph!!!
Interesting to see everyone talking about hot flashes. Very bad hot flashes for years - all starting when I started the treatments for PsA. They recently decreases a lot when I got off the Lyrica. Any activity like housecleaning though and I get very hot and perspire which never happened to me before. I also started menopause very early so is it the medications or the PsA - I wonder now.
I hate to get into any conversation involving hot flashes and other "female things" I live in a house of females and the only other male was my cat and they had him neutered so I keep my mouth shut. However fatigue is one of the hallmarks of the disease. I would bet on the medications having an effect on hot flashes. I have them and I know I am not in danger of menopause (early or late)
LOL!! Thanks for the laugh!!
tntlamb said:
I hate to get into any conversation involving hot flashes and other "female things" I live in a house of females and the only other male was my cat and they had him neutered so I keep my mouth shut. However fatigue is one of the hallmarks of the disease. I would bet on the medications having an effect on hot flashes. I have them and I know I am not in danger of menopause (early or late)
Fatigue and joint pain are the real killers for me also: I'm 48 and was diagnosed with PsA when I was 27. My energy has never been the same. I work part-time (15-30 hrs/week) because that's about all I can handle. This disease is very frustrating to me, I've been more than a little discouraged of late. My hope stems from the fact that I have a great new Rheumy, there are also a good number of medications that I haven't tried as yet (I've only tried one biologic).
Good luck to all..
Unfortunately this goes with this disease.