Does any one have a diet that will work well with MS Cotin. I have been struggling with keeping my movements moving. I take Mirolax every night before I go to bed. I been on a high fiber diet. Now I think I have diverticulitus flaring up.
Mirolax is just a different kind of "softener" If you aren't drink a tom of water, it won't have any effect. Most of us are underhydrated just from the disease itself. Get a bag of psyllium husks about a tablespoon a day. Nothing fancy just the husks. That will keep things moving (and control the diverticulitis)
BUT I gotta ask are you working with a Pain Management team to find alternatives to the MS-Cotin??? The side effects will continue to stack up....
Yes, I have a pain management dr. I would like to self medicate when I need to rather than the extended release pills which cover me 24/7. I have the IR version but they only last about 2 hours for me. They want me to be more active, but the more I move the more pain med's I need. I have a degenerative spine, multipule buldging disc's and have had surgery to fix a herniated disc. I also have a spinal stimulator to reduce pain medications. I just when through surgery on both hands and now the Dr's are thinking my neck is pinching nerves and making my hand numb.
I am alergic to most of the standard drugs. So far I have been okay with MS Cotin. I want off of MS Cotin but right now is seem to be the only option that I have. I get a bad rash on Perocet, Lortab and Roxy Cotin....and I know... who does have rashes with PsA. But I am that one. The surgeon thought that I was hypersensitive to the Drugs because of the stress on my body do to the surgeries and constant pain.
I was on MS Contin for a few years, and I understand the issue. Fiber supplements and I don't mix, so I made sure to eat a little box of raisins every day, two if things were really difficult, as well as upped my fruit intake (I eat a lot of fruit anyway) and water intake. If I skipped the raisins and forgot to drink enough water it sucked.
TMI warning for toilet details!
One problem I had that goes along with this is my bowel movements were larger, and sometimes, because they wouldn't break up easily, the toilet would clog. A tip from someone else on the same meds was to put a squirt of Dawn dishwashing detergent into the toilet, and in 10 minutes everything will flush easily. It really helped, but only worked when I was home with only my family. Plus we have 3 bathrooms :)
Best wishes!
Not Understood said:
Yes, I have a pain management dr. I would like to self medicate when I need to rather than the extended release pills which cover me 24/7. I have the IR version but they only last about 2 hours for me. They want me to be more active, but the more I move the more pain med's I need. I have a degenerative spine, multipule buldging disc's and have had surgery to fix a herniated disc. I also have a spinal stimulator to reduce pain medications. I just when through surgery on both hands and now the Dr's are thinking my neck is pinching nerves and making my hand numb.
I am alergic to most of the standard drugs. So far I have been okay with MS Cotin. I want off of MS Cotin but right now is seem to be the only option that I have. I get a bad rash on Perocet, Lortab and Roxy Cotin....and I know... who does have rashes with PsA. But I am that one. The surgeon thought that I was hypersensitive to the Drugs because of the stress on my body do to the surgeries and constant pain.
I understand the need for the meds, I guess I was more concerned with the morphine. its seems to have more rash, constipation etc etc than some of the newer synthetics. Some of the folks using it in our little community also have mentioned that they build tolerance failry quickly.
Not Understood said:
Yes, I have a pain management dr. I would like to self medicate when I need to rather than the extended release pills which cover me 24/7. I have the IR version but they only last about 2 hours for me. They want me to be more active, but the more I move the more pain med's I need. I have a degenerative spine, multipule buldging disc's and have had surgery to fix a herniated disc. I also have a spinal stimulator to reduce pain medications. I just when through surgery on both hands and now the Dr's are thinking my neck is pinching nerves and making my hand numb.
I am alergic to most of the standard drugs. So far I have been okay with MS Cotin. I want off of MS Cotin but right now is seem to be the only option that I have. I get a bad rash on Perocet, Lortab and Roxy Cotin....and I know... who does have rashes with PsA. But I am that one. The surgeon thought that I was hypersensitive to the Drugs because of the stress on my body do to the surgeries and constant pain.
I have an neighbor who has that problem. He has similar back issues but not PsA. But he is now on 120 mg Fentanyl patches and just told me it's not working for him any more. So it does worrie me. That is why I would like to self medicate when I need it rather than 24/7 but the ups and downs are just as bad.
tntlamb said:
I understand the need for the meds, I guess I was more concerned with the morphine. its seems to have more rash, constipation etc etc than some of the newer synthetics. Some of the folks using it in our little community also have mentioned that they build tolerance failry quickly.
Not Understood said:Yes, I have a pain management dr. I would like to self medicate when I need to rather than the extended release pills which cover me 24/7. I have the IR version but they only last about 2 hours for me. They want me to be more active, but the more I move the more pain med's I need. I have a degenerative spine, multipule buldging disc's and have had surgery to fix a herniated disc. I also have a spinal stimulator to reduce pain medications. I just when through surgery on both hands and now the Dr's are thinking my neck is pinching nerves and making my hand numb.
I am alergic to most of the standard drugs. So far I have been okay with MS Cotin. I want off of MS Cotin but right now is seem to be the only option that I have. I get a bad rash on Perocet, Lortab and Roxy Cotin....and I know... who does have rashes with PsA. But I am that one. The surgeon thought that I was hypersensitive to the Drugs because of the stress on my body do to the surgeries and constant pain.
Pear juice was recommended to me by a Physiotherapist. She explaind that it has the same type of enzymes that your own body produces that get things moving. Half a glass a day! Worth a try.
You could try using a product called Restoralax...at least that is what it is called in canada, which is polyethelyne glycol 3350 beads which bring water to the bowel and soften the stools and encourage more frequent stools. I too have had to take ms contin for quite a while (this is probably about year 8 now, mind you I have not had to up my dosage at all in that 8 years, so no tolerance has occured..which is good). I had 3 spinal surgeries for a fractured vertebrae, so I needed a spinal fusion with instrumentation, first 2 "failed" they call it, and the 3rd "worked", now I have PSA with spinal involvement, go figure, and AS apparently.
Anyway, the Restoralax was recommended to me by a gastroenterologist to combat the problem of chronic constipation from these meds. It works to use on a frequent basis at the recommended dosages, but you have to use it all the time. I also find that if I eat this bread that I found called "Chia Flax Bread" which we get from Cobbs bakery here in Canada, which is a flax bread with added Chia Grains in it, high in Omega 3 fibre, that it really helps with the constipation....if I don't have my 2 slices of that bread in the morning (which is yummy by the way), I can notice a difference, and it is very healthy. Don't know if you have this particular bakery around, but perhaps you could look in to Chia Grains, they are very good for you and super high in fibre and really help me alot.
Hope this helps, as I know from experience how difficult it is to manage long term on those meds....this is what has worked for me....oh, and you MUST drink ALOT of water!!!!!!
good luck to you .
Dani.
This all started because I had to interrupt my routine for a medical proceedure. I had a heart Cath. I could not eat nor drink for about 18 hours. But I still was told to talk my med's with as little water as possible...won't make that mistake again! Well I found out the result my heart is good just enlarged. But I ended up with a bowel that stopped. With some luck I thing I have made it passed the worst thanks to everyone for your help and support. The water has been the biggest help. I had been taking Miralax regularly. So I went on a liquid diet for about 48 hours. Things began to move. Then I added whole wheat bread and chicken broth, and then on to mashed potatoes. I am going to try to stay off of the more extreme fibers until thing heal up. But I think I am well on my way.
Again thanks for your help