Bouts of debilitating nausea

I had 5 weeks of nausea about 2 months ago. Some days the nausea was debilitating. It went away on it’s own and no meds helped except phenegran. and then about 2 weeks ago the nausea came back and was completely debilitating for about 4 days. I was bedridden and the only med that helped was phenegran.

I’ve had an endoscopy, saw an ear doc, 2 GPs and no diagnosis. I have an appointment with a new gastroenterologist on June 21.

Could it be autoimmune related? Pancreatitis?

That sounds miserable, and I’m so sorry that you’re dealing with that.

Ugh, that’s not fun at all. I guess almost anything can be autoimmune related (I seem to be learning that the hard way recently :roll_eyes:).

Do you have any other symptoms at all? Vertigo or dizziness? Other things ruled out, like family history of migraines? Pregnancy? (I’m guessing if that applied you’ve already thought of it). Isolated nausea is an odd one.

My sister had acute pancreatitis and I’ve had a mimic (biliary colic I think), and it sends you to the ED pretty fast, however chronic pancreatitis can be almost symptom-less from what I’ve read. Have you tried other classic anti-nausea meds like Maxolon or Ondansetron? I must admit phenergan makes me very sleepy so if I was taking it I would struggle to get out of bed even if it was working.

I hope the new gastro has some ideas for you.

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Thanks Stoney.

Thanks for the reply Jen.

I don’t have any dizziness or vertigo and Ondansetron has never helped me with nausea after surgeries etc. I don’t know maxolon. Will ask the gastroenterologist about it. And yes phenegran makes me sleep - I can’t function when I take it but it does give me a reprieve when I have the debilitating nausea.

Maxolon isn’t a good long-term drug as it can have some rare but nasty side effects if taken regularly as I recall (sorry this was some time ago). But I took it for some time, and I think it is quite safe short-term.

It does have a similar mode of action as phenergan, whereas ondansetron is classed differently, so it is possible the Maxolon may work and won’t make you sleepy, so it might at least be a short-term band aid while you are figuring things out.

It’s an older drug than ondansetron and I think most GPs etc have been recently trained that ondansetron is “better”, but I found Maxolon is more effective for my Crohn’s. In my case, that was probably because a part of the nausea was due to slow transit, and one action of Maxolon can be to speed it up. Ondansetron still works for me, just not as well.

Hope you get some answers soon.

I’m definitely going to ask for script for Maxolon next week when I see the gastro. This is very helpful info - thanks!

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Couple of things leap to mind that you might want to look in to … gastroparesis and vagus nerve problems.

Hope that you find some answers.

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