Saw Doc today, he didn’t like all the ligament and tendon pain I am having in my knees, and now my hands are starting hurt. I have been on Enbrel for 7 months, he said that was long enough it was not working well enough. Staying on Enbrel for two more months because of insurance, then he is changing to Cosentyx. He says it seems to work better for PsA that involves then ligaments and tendons better.
He told me the insurance would cover it for once a month, if that is not enough he will go to twice a month.
W cosentyx things got better almost immediately but had been doing v aggressive cortisone both daily pills and fréquent injections on my knees and long period of patrol as well as methotrexate then gradual diminishing of cortisone no more patrol necessary and after initial weekly injections of cosentyx now once a month difference seems v strong remember before cosentix was about to do knee implants and had to use the stick if any length of walking necessary
Unfortunately still have to use methotrexate once a week at one point, before cosentyx, dose had been increased frm. 10mg to 15mg and my hair started falling out in chunks as when i had chemo for my cancer treatment luckily got it back to 10 again bit ho knows how long methotrexate will have to be taken ?
Been on Cosentyx now after stopping the Enbrel. Hope it kicks in soon! First few days a lot stiffness was gone, but now I am more stiff than anything else. Anyone have experience how long it took Cosentyx to be effective?
Doc said today that I will need to start taking two Cosentyx every 4 weeks instead of one every two. We are going to see if I can get at least 2 weeks of relief. He wasn’t sure about the two every time because he didn’t want me to get an infection, but we are going to try it. If that doesn’t work in two weeks we are going to try Humira. I went from Enbreyl to Cosentyx because he said the Cosentyx targets the enthesitis better, but I am miserable, so we are going to see what happens. I told him I would be happy with 2 weeks good and 2 weeks miserable instead fo just miserable all the time.
Everyone cross your fingers, but I am guessing Humeria is next. He also mentioned Talz and Xeljanz.