I am having a horrible time making plans lately. I cannot keep my comitments for one reason or anouther. I slowed way down at work ( one day a month- only 3 hours) and so far have been able to do that, but to make up for the loss in income thought I would start teaching classes in the evening again ( 2 nights a month- no big deal) how ever I have had to cancel that last 3 classes, this time is beacuse my sweet little boy dragged his cold home and gave it to me....
I am wondering if I should just give up making plans. It is very frustrating. I feel fine one day and can barely function the next. I am trying to not over do it on the days I feel good, I know I will regreat it later.
how do you all deal with this?
I try ti take it easy for a few days prior to something I know I have to do, however that doesn't always work.... I am at a loss.
That's very frustrating. For me, when I'm very fatigued I also have a really hard time making plans. When I do make plans, if it is something big, like an outing to the park with the kids, which will stretch out for hours, this is all I do that day, and I will leave the next day completely open to recover.
I also want to remind you though, that it's not uncommon to be depressed when one has pain, fatigue, etc. You may want to consider this as a partial cause. I hope it starts to be easier for you soon.
Thanks for your replies, I have considered depression, I know that it does play a role however my fatigue and now this stupid cold play a much larger part.
my youngest son is 6, and he is a huge Mommas boy. He told me this morning that I should wash my hands more!
Ocustamp, not being able to make plans is THE HARDEST part of PsA for me. My disease is often volatile, I'm down in bed one day, feeling better the next. I can't plan vacations, kid activities, even chaperone my kids' field trips for school because I don't know how I'll feel that day. I've learned to adapt, but it does take time, and the willingness of others to understand. I do what I can, and I know my kids appreciate that a lot. My husband really appreciates it when I'm able to cook, he knows I can't always even do that.
One thing that helps is to spread out activities, and simplify. I only schedule mandatory things like grocery shopping or a Costco trip, or dr. appts. ever other day, building in a day of rest between activities. I don't always need it, but often it helps me be less exhausted at the end of the week, leading to a better weekend.
Best wishes on this journey. There is a definite learning curve!