I experienced the worst pain ever today when I went for an MRI of my right shoulder. I had no idea how much pain I could handle until I spent 30 minutes motionless frozen in position with my arm fully extended. For the first time I really fear that what I've always called my normal PSA aches and pains are becoming something scary.
I started several years ago with back pain then it became neck problems which lead to nerve treatments. Swollen aching hands and wrist always. Then months later my knee swelled up like a melon, I started on methotrexate. Then it was plantar fasciitis and problems in my Achilles tendons so we added Humira. Went off all after nine months due to respiratory infections. When I went back on the Humira, it no longer helped (if it ever really had). Did three months on Embrel and developed chronic pink eye and later diagnosed with Scleritis. Today I have the problems in my shoulder specifically, but pain to my fingers and wrist again that is unbearable. I thought I would pass out today waiting motionless for the MRI to end. Wow, unimaginable shoulder pain. I'm waiting on results but really worried I will ever find relief. I'm 53 with two young daughters and for the first time today I question what my future will hold with I can't find a way to get into remission. My DR wants me to start Simponi next. Is there anyone out there who has been down a similar path and do you have advise to share. It's been over two years now on aggressive treatments with out remission of improvement.
Thanks for your feedback,