Primary Care Doc...PsA opinion

:joy::hugs::rofl:
I like your rheumy’s view on life! Makes sense to me!

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I know how you feel. It the pamphlet saY “Only one person in 10,000 experience these side effects,” guess who go them.

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EXACTLY!!! I am the “Murphy’s Law” of medication side effects. Obviously you too. I could list drug after drug after drug. :face_with_raised_eyebrow:Glad you know where I’m coming from.

What I can’t stand is doctors and other people thinking because we read the accompanying drug info we imagine we have the SE. I always read the accompanying drug info and 9 x out of 10 I don’t get any SEs.

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I agree! I’m sure there are some people who may be influenced by reading the SE literature. But there IS a reason we get that info with our meds! Otherwise how are we supposed to know if we are having a side effect possibly related to the drug? If I read the side effects I usually forget them within a day anyway. Then there are those who refuse to pay any attention and don’t read anything. What burns my butt more than anything is that the DOCTORS seem (key word: seem) to be clueless about the side effects. THEN they prescribe yet another drug to take care of what may be a SE of the first. Case in point: A dear friend who has severe spinal issues started on a statin a year ago. I have watched her go from bad to worse with pain issues. And she has been horribly depressed. Both issues well documented with statins. So what does her PCP do? Doubles her gabapentin and prescribes an anti-depressant. Finally she saw an acupuncturist who told her it may well be the statins. Nothing else has changed with her copious diagnostics. She is a “doctor knows best” kind of person, but I think her views are changing.

OMG tell her what happened to me! But when I told my Internist how lousy I’d been feeling for almost a year, which started about 2 months after I went on the statin and some other new meds, she was positive the statin was causing the problems I described. I asked her if it could be the new beta blocker but she said no, statins are known to cause depression and pain and told me to stop then immediately. It only took a few weeks before I was back to normal.
My husband is like your friend. He never reads the drug info and never connects the dots when he gets SEs…and his doctors also have added pills instead of taking them away! But, recently his Cardiologist reduced his dosage of a bunch of pills and prescribed the Obesity Code book and my husband feels so much better!
I think usually we’re just guinea pigs and a lot of our treatment is trial and error…my doctors know my attitude towards meds and I tend to not take most of the stuff they try to give me or take a smaller than normal dose. (And do pretty well with less.)

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I’ll pass the info on to my friend. I think she is slowly being convinced. Not sure why she is so reluctant - I’d have stopped the statins long ago. You seem to have found a great internist! I’m in your camp with the meds. The fewer the better…part of the reason I have the reluctance with a biologic 'cause that’s a biggie. But I guess the key is trying to choose wisely.

A biggie yes, in some ways. But the way biologics have been described to me - it was a dermatologist who summed it up - they are ‘smart’ drugs that target a small part of the immune system. The first time I took Humira was in the company of a very nice nurse sent out specially. We sat outside in the sunshine after I’d done the injection and I waited for green gas to come streaming out of my ears and my head to whizz round 360 degrees. Nothing happened and nothing ever has, except ‘biggie’ improvement in the PsA department.

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These are the encouraging words I need to hear Sybil. The visual is pretty funny too! How long have you been on Humira?

Just read your profile that you’ve been on Humira since 2014. Good to know! And positive that you are able to be active. I hope you’re enjoying the artsy side of yourself! Art is my joy. But so hard to sit and do glasswork now.

What sort of glasswork do you do Kris? I engraved glass (with a drill and sandblasting) for a few years, am having a long break from it at the moment but am hoping to be able to pick it up again sometime :smile:

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Whew! Sandblasting! Nope, never done that and it sounds difficult. Bet the results were beautiful. I hand paint crystal. Usually I get yawns from people when I say that. But I use an enamel that bakes on and creates some really pretty effects. Website is www.thegildedtouch.com

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Wow!! I went and had a quick look at your website… amazing work!!! Here’s hoping you are able to get back into more again soon!!!
If you have facebook access you can see what I used to do here:
https://www.facebook.com/jeansartglassengraving/

Sandblasting isn’t so difficult once you know how and the materials etc to use… I used a photo resist to create the mask/stencils for the that… the drill engraving takes a little practice and the right equipment.

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Beautiful work! The intricacy of the designs are amazing to me. You have an incredible talent and I hope you can continue to create these works of art. These are the things that fill our soul.

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Those look awesome!! I’m sure it seems easy if you’ve practiced a lot… but even if I trace something it won’t be that steady! Amazing!

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Awww… thank you Kris!!! I am hoping to be able to pick it again sometime soon… yes, you are right about these things filling our souls, being creative can have a profound effect on our well being… have a few things to get sorted before I’ll be able to get back into it… the first being to get this darn PsA under better control lol

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Hoping both of us can get the PsA under control.

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Absolutely!!! A wish for all of us :slight_smile:

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LOL Kris mentioned glasswork a while back, and I knew there was someone else who was a glass artist here. I just couldn’t remember who! The other day when you posted, Janson, I went “Ah, that’s the other glass artist! I must introduce her to kris one of these days.”

But you beat me to it. LOL. Wonderful to see your work, ladies!

C

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Count me in as a glass artist. Just a slightly different kind! image

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