@janson and @kris1010 - just adore what you’re both doing or can do glasswise. Such gorgeous talent. Utterly beautiful.
2 Likes
Mine is the wine glass …
There are many ways to interpret the doctors response regarding how it affects one joint …then another.What he may be saying ,and did not say is that it travels.Yes…mine travels.sometimes quickly.Sometimes severely.Usually when it stays in one joint it does more damage…for more than a day or two.When mine travels…I wake up with the top of my foot hurting to my rib area and back hurting to hip low back etc.Lingering is the awful part.Also the fatigue and tendons are a problem .It’s potpourri.Mostly I can say that the Regime…of Enbrel weekly,tylenol daily 2 -4 200 MG celebrex twice daily is working better for me than my humaria.
1 Like
Glad you brought that up creativefluff. I saw my PCP today and was telling him that my joint pain migrates…knees one day along with back and hips, another day it will be my feet and knees and so on. I’m very fortunate that I don’t generally have issues above my waist except my hand now and then. You mentioned Celebrex. My doc asked me if I’d tried that or Mobic. Neither have ever been offered, and I assumed it was because of my Crohn’s and the bleeding risk. He said the mobic was supposed to be easier on the gut. Starting yet another round of prednisone this weekend. Yay.
Saw my PCP today and he humored me with foot x-rays. He said there is no significant joint damage, just bone spurs on both heels. So I take that as good news. And got a referral for a new rheumy so maybe I’ll have better luck with him. I’ll keep trying!
2 Likes
YES!!! That is good news. If your foot pain is from inflammation, that won’t show on the x-rays, but at least you know that serious damage hasn’t been done yet.
Here’s a page about feet from one of our best resource sites. Notice that they specifically mention calcaneal spurs as one of the most common things that happens to feet with PsA.
Your rheumy sounds OK to me. But if you go to the new one, it will be interesting to get their take on what’s going on. I’m assuming that you will always be able to go back to #1 if things don’t work out.
Good for you, being proactive, asking questions and broadening the input that you are getting on your disease.
Seenie
2 Likes
As always, I appreciate your input Seenie. I had read the page you highlighted, but it was some time ago and I didn’t connect the calcaneal spurs to my condition since I didn’t know I had them. The pieces of the puzzle continue to come together, which is a positive. I also noticed that the author stressed the importance of starting a suppressive medication asap so that further damage doesn’t occur. As to my current rheumatologist, what really burned me was his lack of concern when I went to him in August with the severe issues with my right foot. (Pretty much everyone in this forum agreed that my foot did not look anything like a typical PsA flare, but something else entirely.) The lidocaine injection he gave me was extremely painful, and yet he put in my patient notes that I “tolerated” it well. I did not tolerate it well. As I was sitting there in his office, about to hit the ceiling in pain, he kept saying to me, “It’s just pressure, it’s just pressure”, as if I was being a big sissy. I have a pretty high tolerance to pain, and the pain of this was really awful. And it made my foot pain/issues much worse afterwards. Granted, sometimes treatments are painful. But I don’t think this injection was warranted, and I believe he should have suggested more investigation as to what was happening with my foot. I simply don’t have any trust in his decisions because of this. Plus when I asked him about the connection with my chronic kidney disease and PsA he simply shrugged his shoulders and said, “Not my specialty”. My belief is that a good rheumy at the least recognizes the whole body connection with PsA. My culpability in the matter was that I didn’t have a PCP at the time. If I’d had a PCP then I likely would have gone to him first, and things might have taken a different route altogether. I take it as a lesson learned.
Glad u went and figured it out with your doc