Anybody have good or bad experience with this?
Of all the DMARDS it was the only one with no side effects for me and it helped with a number of joints. Literally no probs for me. Only difficulty is it wasn’t enough. No eyebprobs i didnt already have. Have just changed to biologic. One thing though, it can stir up skin problems like psoriasis so is often not prescribed in PsA. I was on it for 6 months…longest stint on a dmard.
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I’m with MacMac on the lack of side effects. One member here about five years ago described it as using a water pistol on a forest fire, (love that saying 
) and I have to say that for me it was the same, but quite a few others have reported good results.
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I was on plaquenil for a few years. It worked well for a while but wasn’t sufficient in the long term. You should have a baseline eye exam and visual field done.
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I’m with Stoney, too. No side effects, worked well for a time, but then wasn’t strong enough.
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I refused to take it as it could reignite the skin stuff which I hadn’t had for decades. What’s really astonishing me is that that rheumy never mentioned anything about eyes. Gosh!
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I’ve currently been taking it since last November with no side effects. I was actually going to call my Dr tomorrow though, as it only seemed to help a short time, and now other joints are giving me problems. It knocked down the swelling in the joints that were bothering me last fall/winter, but it’s not preventing swelling in NEW joints, if that makes sense. My diet was crummy this last month though, so I wonder if I’m simply more inflamed everywhere. I hate the idea of switching to something stronger, but I think it’s necessary. I hope it works well for you. I’ve also noticed it did nothing for my severely dry eyes, though they don’t seem any worse.
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Thanks all who replied. 
i freaked myself out last night consulting doctor google for side-effects.
I have to stop doing that.
You guys are the Database! 
I will give it a shot… Didnt want to start thismorning because i had a big meeting with a client today and after the last drug (Salofixane) 
did not know what would happen.
going to start tomorrow.
one more thing
the rumy mentioned the eye thing but said that he’s never had an issue with a patient and said that in the olden days soldiers and fighter pilots were given it and used to complain of brurry vission, but they were on much higher doses. Worth keeping an eye on. Thanks guys!
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My eye doctor has seen a few cases of plaquenil retinal toxicity. They were after many many years of use, but it’s not reversible. That’s why it’s important to catch it as early as possible. I think I was on it for 6 or 7 years. I had eye problems, including retinal, but it was confirmed that it wasn’t from the plaquenil.
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Guys,
Im concerned about this stuff now. How likely is it to worsen skin Psoriasis symptoms?
My scalp is clear at the moment, however my face is quite close to me not wanting to leave the house. I would hate to make it worse.
Just about any of the meds (not just plaquenil) have a tendency to flare the P when first starting, but it is very temporary sort of a last hurrah before it starts to whimper. Its really a fascinating change…
plaquenil retinal toxicity is very rare. a 6 month eye check covers it. Its actually an issue chloroquine/quionine for malaria.
TJ
I never had any flare-up of psoriasis with it. I had a bit of a scare with the eye-thing, but it turned out to be completely unrelated - and possibly a (reversible) side effect of the steroids when at a higher dose. Either way, it’s better now, although the PsA-related sore eye thing is a pain up the rump at the moment.
HCQ never did me a bit of good, but it didn’t give me any grief either. Ditto sulfasalazine. Ditto leflunomide. Ditto methotrexate. 
That’s when I got shifted onto biologics, and they were the game changers.
When you go on a new med, best to do it when you don’t have to be in top form, like the weekend. Unless, of course, you live for weekends … LOL
Yes, we are the database, and our personalities positively scintillate in comparison with Dr. Google, don’t you think? 
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Seenie,
Yeah agreed but Salofixane took 10 days to be full trip out reaction so who knows when you start verses when a reaction. I am hopeful there wont be any reaction though
And yes agreed everyone here has great sparkling personalities that stand out.
Especially yours! You positively Scintillate, Fascinate, resonate and help prevent hyperventilate!
Thanks
Ok I like you already. Hahahaha
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I started this stuff today… See how I go
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Good luck. I hope it helps
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