Today I actually woke up not feeling as if I had been laterally impaled through my trochanters with a medieval excalibur ! This is BIG. REALLY BIG. In fact, this has probably not happened for the last 8 years. I don't even have words to say how amazing this is.
This is the first major milepost to demonstrate that something is working, most likely the Humira.
I realize that I may have setbacks, but for today I am going to celebrate !
I found this great website about dealing with flare ups and setbacks. I am learning to strategize and not catastrophize. I know there will be good days and bad days and really bad days. But for the first time in a very long time, I have HOPE!
That is incredible News. Do you forgive us for our nagging the last 18 mos or so??????
It is especially encouraging for me. I hired a Guy to do my "chores" around home last night. I walked outside climbed into the truck to start plowing and realized I don't want to do this anymore. You gotta understand. Plowing snow is generally FUN. (for guys) My wife will be home tonight She on the other hand will regret telling me I'm not allowed to use the dishwasher or washing machine.
Oh, dear ! I am sorry, lamb ! We never know what the day will hold, do we ? When is your surgery ?
I totally forgive you for nagging...it's the LEAST I can do for you all putting up with my whining....I am a bit of a drama queen, I know. They don't call me the Blue Ridge Diva for nothing ! Oh, I hope things get better for you, soon.
I choose to see flares as my body telling me I need a vacation. Vacations are good things, even for those of us not good at slowing down. Now, if only flares came with tickets to Hawaii....
Things are great actually. As I watched the guy do all the snow removal I realized st Patricks day is just a short ways away so I made a wort boiled it and have 6 gallons of Irish Stout in the Primary.Should make for greta St Paddys Day!!!! With all this time who knows what I can accomplish????
Let me get this right. So your wife is coming home tonight to dishes and laundry and … the odour of WORT? I smell trouble brewing, Lamb!
Still (he he) the stout will be nice on the seventeenth, and with any luck, you’ll be in good shape to enjoy it
tntlamb said:
Things are great actually. As I watched the guy do all the snow removal I realized st Patricks day is just a short ways away so I made a wort boiled it and have 6 gallons of Irish Stout in the Primary.Should make for greta St Paddys Day!!! With all this time who knows what I can accomplish???
Oh mimiB I am so pleased for you! That is great news!
I do not find you whiny nor a Drama Queen. You want to get better and are willing to do the work and deal with the pain. That makes you a hero in my book. You just needed a steadying hand and some encouragement, don't we all?
Lamb you are too funny! Yeah for you, saving your energy for what you enjoy! That s a MAJOR break through for you! Way to go! I am glad your Sweetie is due home tonight. Enjoy!
OK, lamb, well it sounds like you are having fun anticipating St. Paddy's ! Will you turn the stout green? Thanks Michael, yes, we all need encouragement ! I really appreciate it,
Congratulations mimiB! That is such wonderful news.
And thanks for the link to the article on setbacks/flares. You timing couldn't be better as I have just failed Humira and am moving on to Cimzia. Hopefully with similar success as yours ;)
Enjoy your celebration I hope you have ongoing cause for celebration. Thank you for taking the time to share you good news. It is always uplifting to hear of success.
Hi Dandy ! How long were you on Humira ? I took one step forward and three steps back. Not having such a great day today, but that is our life, isn't it? But I'm not catastrophizing. Just because I have a bad day doesn't mean I have a bad life :)
I don't know much about Cimzia, I pray you find some relief soon !
I guess today’s the day to relax, and count blessings, Mimi! I’m so grateful to be living in the Information Age, with internet groups like this for support and friendship, and at a time when there are wonderful new medications like biologicals which help relieve our pain and give us quality of life.
We are fortunate indeed.
I was just thinking the same thing Seenie. I am almost glad I wasn't diagnosed in the 60s. A lot of people who were did really poorly as the meds were so harsh. I was diagnosed in 2008 and have the internet, and thus this group, and bios to help. We are lucky indeed.
I have been on Humira a couple years. It has helped & I had not asked for a change. But my rheumy says it is not doing enough, time to try something new. I am glad he is being proactive.
Hang in there Mimi, may your good far out number the bad.
It IS such a blessing to be able to connect in this way. And I hope Mimi has more success to share :)
I am so happy for you!!! Celebrate and enjoy!! I am praying I get one of those days soon!! I am so depressed and tired!! You go girl!! Thanks for sharing it gives me hope!!