I am a 72 year old woman and have had this for about 53 years. I was 19 years old, when I first discovered my psoriasis, back then very, very few people heard of it. I thought at first that it was a rash, and had a terrible time covering it up. It was mostly on my legs from hips to feet. Back then most women wore skirts or dresses, so you can imagine what I was going thru. Anyway when I was about 23 years someone told me that I might have syphilis, well you can imagine how that made me feel, so I went to a doctor and he told me that I have psoriasis, I was so relieved, until he say hold it, bad news no cure and it will get worse. Well when I met my husband, I told him what I had, and that he will not catch it, he was ok with it God bless him. Anyway the doctor was right, it did get worse, thru the years, I had it from head to toe. I did have some years with remission, but not too many. I remember having pain in my knees and feet during my 30's, but blamed it on the cold weather. Then in my mid to late 40's the pain traveled to my shoulders, hands and fingers. When I went to doctors, all they did was give me pain pills.I moved to a warmer climate, and it helped some, but then I got skin cancer and moved again into the desert mountains. Shortly after I moved I was having severe pain in my lower back and left hip and leg. One doctor I went to did a MRI and found spondylosis in my lower spine. in the mean time I continually got worse. Then 3 years ago I developed an outbreak of psoriasis in my groin and underarms, that is extremely painful. I went to a dermatologist and finally someone told me what I really had " autoimmune disorder" psoriasis and psoriatic arthritis, with no cure in sight. Put me on track with embrel, humira, neither helped, finally tried Remicade. I am on it once a month, by IV in the hospital, It keeps me pain free about 70% for about 2-3 weeks. I still cannot live without my pain pills. I have been going thru this for so long, that I don't know what it is like to be normal, like everyone else, but then I suppose there are a lot of you out there just like me. We just keep going, with God's help. I say prayers for all of us, and hope some day there will be a cure. The only thing that hurts the most is that 2 of my children have it. It broke my heart when I had to tell them why they have that rash, why they have pain in their hands. It does travel thru the family. This is the first time I shared my story with an outsider, and it helps to know that you all know what I am going thru, and we can help each other. Thank you for listening .
Oh, Baklu, this disease is a heartbreaker, isn’t it? We all share stories here, and it feels good. This safe place is where we all “get it”, and where you can just tell it like it is. We don’t go in much for pity parties, but there’s plenty of sympathy and understanding to go around here.
Welcome to our circle! I hope that you will find it a good place for support, information and companionship.
Welcome! I am so glad you found us. There is so much to learn from each other. 
I understand not getting full relief from Remicade, I take it too. What other medications do you take? There may be others that can be added to yours that will help get you those few extra weeks. There is always hope for something better.
Hi baklu, I just logged on and saw your story. It's been a challenge, but you are strong! I always feel so bad for others when it sounds like their journey has been so long and difficult--much worse than mine. My psoriasis started when I was in my early 20s, but it was never too bad. The psoriatic arthritis started slow and pain was intermittent at first and not that disabling, so I was lucky there, too.
I worry that some of my kids will get this, too. There isn't any of it in our family--at least that was ever diagnosed besides me. But my dad had celiac disease, and one grand niece has that, too. My dad had "fungus" toenails all his adult life--I was the designee who always clipped them because I adored him and was "daddy's girl". Now I wonder if that was psoriasis!
Thank you for opening up and sharing your story--sometimes it's good to get it off your chest to people who really understand.
Welcome Baklu, and thankyou for sharing your story. My heart goes out to you. I sometimes wonder if my Ma feels responsible for my PsA also. I’ve told my Neice (when she gets in her blaming rampage about my side of the family) none of us get a choice of what family we are born into nor what genetics we have. I work with special needs kids and I reminded of that everyday.
Thank you for sharing and welcome. You truly are a fighter!