Found out last week that I’m making antibodies to Remicade. The only meds I have left are Tremfya. And Tremfya.
So we’re going back to Simponi because the last time I remember my body feeling okay-good was when I was on Simponi infusions. We thought they’d stopped working so we switched and I swear I haven’t felt good since.
I have no idea if this is a lost cause. I’m dreading the stretch between here and the end of December when I’ll get my first dose of Simponi. But also what if it doesn’t work at all? What if the reason it stopped working was the same as why Remicade has stopped working (which let’s be clear worked just barely.)
The week before my last Remicade infusion I couldn’t brush my hair and could barely dress myself (both shoulders had intense pain when I raised them and my right hand was just buggered). If I’m making antibodies I’m worried I’ll clear it even faster and spend who knows how much of December in too much pain to do anything.
Just. What the hell now?