Hospital Admission

Hi All,

Thanks to anyone who takes the time to read this and reply.......so I met with my consultant and clinical nurse specialist today and they have decided the best thing now is to admit me to hospital as all my bloods are I quote "out of sync", I am on crutches, alot of my joints are swollen, I have no appetiate AND can not sleep.......

So I am going to be admitted to hospital on Monday for at least a week to try and get my symptoms and everything else under control - as everything we have tryed to date has been NO good. I feel very scared, frightened, emotional as I did not think you could end up in hospital with PsA plus it will be my first time there as an "inpatient".

Any suggestions or tips as to what to expect in hospital, from meds etc I would love to hear!

Thanks In Advance,

Carolynn.

Wow, so sorry to hear that. I have a fair amount of experience with being a hospital "inpatient" from my spinal fusion surgeries, but not from my newly diagnosed PsA. I guess one good thing is that they are doing something to try and help you feel better, and get things under control, that is positive. I don't know where you are located (u.s. or canada or elsewhere, I am in Canada), but generally the treatment I have received in hospitals has been pretty good. They will likely do a whole bunch of blood tests, maybe a bone scan (? don't know if they have done this for you already?), and will likely start you on a regimine of meds once they have the blood figured out. Assuming there is nothing "life threatening" out of control, which of course they would attend to first, they will likely put you on a regime to get your PsA under control, noting what you have tried/not tried in the past.

They will also help you to get some much needed rest, and control your pain through meds. Like I said, I have NOT been hospitalized for my PsA BUT have been in there for 3 major spinal fusion surgeries so I have a fair bit of experience with it. My advice to you would be to, as hard as it may be, embrace this as an opportunity to try and get some much needed rest, have your pain under control as best as possible, and try to look positively as they would not be going to this length to get your disease under control if they did not deem it very necessary.

I don't know if this helps at all ,but I wish you well...I know it is very scary, especially if you have not been in a hospital before. In my experiences, they really are caring and do want to help you. Good luck to you....sending you positive thoughts!!!

Hang in there.. You'll be in our prayers.

Goodness :( I hope they get things sorted out for you soon. I've only been in the hospital for an emergency surgery, so I can't really say what it would be like for PsA but I would sugest you bring some nice things to keep you busy. A laptop and some books maybe. And some nice soap and shampoo. I should think they'll have you seeing a physiotherapist as well as the MDs. Best of luck and get well soon!

Hi Carolynn,

It IS scary to be admitted to hospital. I'm sure I don't know all there is to know about this, but I do have a few suggestions. Expect the hospital to be busy and loud. No one who works there will understand that people sleep a few hours out of every day.

Also expect to wait, and wait, and wait, and wait. They will get to you eventually, but do not be afraid to hit the call button more than once if you are in distress. Then be very humble when someone answers it. ;-) They may call you at odd hours for your tests (like 5:30-6 am.) This is so they can get inpatient tests done before they open the doors to the out-patients.

You likely will get to see your doctor for a few minutes each day, usually once in the early morning or once in the early evening. He will expect to say hi, you look good, I'll see you tomorrow, and wave as the door closes behind him. Be prepared for him and don't let him do this to you. All you have to do is say "I have a question if you have a moment." He'll always have a moment. Just don't let him run out on you. This is your chance to get things cleared up (why did I have a cat scan this morning?) or to ask for something you NEED. (I am constipated, can you help with an okay for milk of magnesia (or whatever you use). I have a cold. Can I have an antihistamine or something? I can't sleep in here. Can you help me with that? I'm really nervous about the MRI; can you give me something that will get me through that? You can't/won't get anything from anyone in there unless he okays it.

You don't say how old you are, but just in case, if you are older, in late 60s or older, you may become confused in the hospital. Prepare yourself and your family for this. It's common and will disappear when you leave the hospital. There are reasons for this, but I won't bore you with them right now. Bottom line, it's not at all serious and it goes away when you are removed from that environment.

1. wash your hands every time you think of it. Take some lotion with you to use after you wash your hands so often. Handwashing will help keep from picking up colds, flu or other bugs.

2. Most hospitals will supply basic stuff for personal care (toothpaste, toothbrush, comb, soap, etc.) I always found that it helped me to have my own stuff with me. I didn't feel so institutionalized that way. This is true about your own pillow, too. If you can tolerate dry shampoo, drop that in your bag, too. Soap on a rope will help keep your hands free for catching yourself if you slip or slide in the bathroom., and you won't have to worry about picking it up if you drop it.

3. Ask what's in the med cup or syringe EVERY time it is brought to you and make them read your name to you. This is for your protection so you don't get someone else's meds. Know where your emesis basin is (in case you have to throw up after a new med.)

4. Take some snacks, unless you just happen to really like jello.

5. Take slipper socks with you or socks and slippers. Every hospital I ever worked in was cold. They heat the hospital for the staff who is busy walking around all day. So, as a patient who isn't moving,patients are most always CoLD. Same is true for pjs--light flannel pants and a long-sleeve tee or sweats are great--and you don't feel so exposed. A light weight robe for getting into and out of the shower will be good. They should provide shower shoes. If not, you might think about cheap (dollar store) flip flops. You won't pick up athlete's foot if you wear shower shoes. Extra underwear is not out of the question.

6. When you go for procedures (like x-rays) always ask the tech if they "see" anything on the x-ray. Counter their argument that they cannot tell you anything with, "Oh, I understand that completely. I just wondered if there were anything I should be sure to ask my doctor about when I see him." Sometimes, not always, it works to get extra information out of the techs. If you have an MRI while you are there, ask for ear plugs and a washcloth. The magnets are quite loud and the earplugs will help with the racket. The washcloth can be left dry, folded and placed over your eyes so you aren't tempted to open them while you are in the tube. The tube really freaks me out and the washcloth makes it all better; you may have no problem with it.

7. Do take pencil and paper so you can write down questions and answers. I never remember anything they say to me in hospital. I don't know if it's the meds, being scared, or being in denial. But I get home every time saying, "What did he say?" Also take crossword puzzle books, magazines or something you can carry on your lap to entertain yourself with. It will help kill the time sitting in the hallway waiting for your x-rays.

8. If you share a room, ask your nurse if there are any special precautions for infection in your room that you need to be aware of. Could help you in terms of exposing yourself to a hospital "bug."

9. What's the hospital policy on cell phones? Do I have a phone in my room and what's the number?

10. Don't take anything with you that you care about. No jewelry, not that special pair of slippers. You might have very honest people taking care of you. Still, patients belongings are often returned to the wrong patient. Most likely they will take your jewelry away from you while you are in there to place in a safe or locker. Best to leave it at home.

Hope I haven't told you too much and overburdened you. Use only the parts of this that you think will help you. I was always glad to be released, but also happy to have the opportunity to find out what's going on with me. It's not so bad if you know what's coming. Best of luck to you; we'll be thinking about you. Stay in touch as you can. :-)



Byrd Feeder said:

Hi Carolynn,

It IS scary to be admitted to hospital. I'm sure I don't know all there is to know about this, but I do have a few suggestions. Expect the hospital to be busy and loud. No one who works there will understand that people sleep a few hours out of every day.

Also expect to wait, and wait, and wait, and wait. They will get to you eventually, but do not be afraid to hit the call button more than once if you are in distress. Then be very humble when someone answers it. ;-) They may call you at odd hours for your tests (like 5:30-6 am.) This is so they can get inpatient tests done before they open the doors to the out-patients.

You likely will get to see your doctor for a few minutes each day, usually once in the early morning or once in the early evening. He will expect to say hi, you look good, I'll see you tomorrow, and wave as the door closes behind him. Be prepared for him and don't let him do this to you. All you have to do is say "I have a question if you have a moment." He'll always have a moment. Just don't let him run out on you. This is your chance to get things cleared up (why did I have a cat scan this morning?) or to ask for something you NEED. (I am constipated, can you help with an okay for milk of magnesia (or whatever you use). I have a cold. Can I have an antihistamine or something? I can't sleep in here. Can you help me with that? I'm really nervous about the MRI; can you give me something that will get me through that? You can't/won't get anything from anyone in there unless he okays it.

You don't say how old you are, but just in case, if you are older, in late 60s or older, you may become confused in the hospital. Prepare yourself and your family for this. It's common and will disappear when you leave the hospital. There are reasons for this, but I won't bore you with them right now. Bottom line, it's not at all serious and it goes away when you are removed from that environment.

1. wash your hands every time you think of it. Take some lotion with you to use after you wash your hands so often. Handwashing will help keep from picking up colds, flu or other bugs.

2. Most hospitals will supply basic stuff for personal care (toothpaste, toothbrush, comb, soap, etc.) I always found that it helped me to have my own stuff with me. I didn't feel so institutionalized that way. This is true about your own pillow, too. If you can tolerate dry shampoo, drop that in your bag, too. Soap on a rope will help keep your hands free for catching yourself if you slip or slide in the bathroom., and you won't have to worry about picking it up if you drop it.

3. Ask what's in the med cup or syringe EVERY time it is brought to you and make them read your name to you. This is for your protection so you don't get someone else's meds. Know where your emesis basin is (in case you have to throw up after a new med.)

4. Take some snacks, unless you just happen to really like jello.

5. Take slipper socks with you or socks and slippers. Every hospital I ever worked in was cold. They heat the hospital for the staff who is busy walking around all day. So, as a patient who isn't moving,patients are most always CoLD. Same is true for pjs--light flannel pants and a long-sleeve tee or sweats are great--and you don't feel so exposed. A light weight robe for getting into and out of the shower will be good. They should provide shower shoes. If not, you might think about cheap (dollar store) flip flops. You won't pick up athlete's foot if you wear shower shoes. Extra underwear is not out of the question.

6. When you go for procedures (like x-rays) always ask the tech if they "see" anything on the x-ray. Counter their argument that they cannot tell you anything with, "Oh, I understand that completely. I just wondered if there were anything I should be sure to ask my doctor about when I see him." Sometimes, not always, it works to get extra information out of the techs. If you have an MRI while you are there, ask for ear plugs and a washcloth. The magnets are quite loud and the earplugs will help with the racket. The washcloth can be left dry, folded and placed over your eyes so you aren't tempted to open them while you are in the tube. The tube really freaks me out and the washcloth makes it all better; you may have no problem with it.

7. Do take pencil and paper so you can write down questions and answers. I never remember anything they say to me in hospital. I don't know if it's the meds, being scared, or being in denial. But I get home every time saying, "What did he say?" Also take crossword puzzle books, magazines or something you can carry on your lap to entertain yourself with. It will help kill the time sitting in the hallway waiting for your x-rays.

8. If you share a room, ask your nurse if there are any special precautions for infection in your room that you need to be aware of. Could help you in terms of exposing yourself to a hospital "bug."

9. What's the hospital policy on cell phones? Do I have a phone in my room and what's the number?

10. Don't take anything with you that you care about. No jewelry, not that special pair of slippers. You might have very honest people taking care of you. Still, patients belongings are often returned to the wrong patient. Most likely they will take your jewelry away from you while you are in there to place in a safe or locker. Best to leave it at home.

Hope I haven't told you too much and overburdened you. Use only the parts of this that you think will help you. I was always glad to be released, but also happy to have the opportunity to find out what's going on with me. It's not so bad if you know what's coming. Best of luck to you; we'll be thinking about you. Stay in touch as you can. :-)

Okay, don't ask me why this message posted twice. Once was more than enough!!! lol

Byrd Feeder! You’ve written the go-to authoritative reference work on hospital stays. I think the moderators need to feature your post! As I read your advice, I thought “yup… yup…for sure…absolutely…”. Thanks for the post. I’m sure it will be very helpful for Carolynn.

Byrd Feeder said:

Hi Carolynn,

It IS scary to be admitted to hospital. I’m sure I don’t know all there is to know about this, but I do have a few suggestions. Expect the hospital to be busy and loud. No one who works there will understand that people sleep a few hours out of every day.

Also expect to wait, and wait, and wait, and wait. They will get to you eventually, but do not be afraid to hit the call button more than once if you are in distress. Then be very humble when someone answers it. :wink: They may call you at odd hours for your tests (like 5:30-6 am.) This is so they can get inpatient tests done before they open the doors to the out-patients.

You likely will get to see your doctor for a few minutes each day, usually once in the early morning or once in the early evening. He will expect to say hi, you look good, I’ll see you tomorrow, and wave as the door closes behind him. Be prepared for him and don’t let him do this to you. All you have to do is say “I have a question if you have a moment.” He’ll always have a moment. Just don’t let him run out on you. This is your chance to get things cleared up (why did I have a cat scan this morning?) or to ask for something you NEED. (I am constipated, can you help with an okay for milk of magnesia (or whatever you use). I have a cold. Can I have an antihistamine or something? I can’t sleep in here. Can you help me with that? I’m really nervous about the MRI; can you give me something that will get me through that? You can’t/won’t get anything from anyone in there unless he okays it.

You don’t say how old you are, but just in case, if you are older, in late 60s or older, you may become confused in the hospital. Prepare yourself and your family for this. It’s common and will disappear when you leave the hospital. There are reasons for this, but I won’t bore you with them right now. Bottom line, it’s not at all serious and it goes away when you are removed from that environment.

1. wash your hands every time you think of it. Take some lotion with you to use after you wash your hands so often. Handwashing will help keep from picking up colds, flu or other bugs.

2. Most hospitals will supply basic stuff for personal care (toothpaste, toothbrush, comb, soap, etc.) I always found that it helped me to have my own stuff with me. I didn’t feel so institutionalized that way. This is true about your own pillow, too. If you can tolerate dry shampoo, drop that in your bag, too. Soap on a rope will help keep your hands free for catching yourself if you slip or slide in the bathroom., and you won’t have to worry about picking it up if you drop it.

3. Ask what’s in the med cup or syringe EVERY time it is brought to you and make them read your name to you. This is for your protection so you don’t get someone else’s meds. Know where your emesis basin is (in case you have to throw up after a new med.)

4. Take some snacks, unless you just happen to really like jello.

5. Take slipper socks with you or socks and slippers. Every hospital I ever worked in was cold. They heat the hospital for the staff who is busy walking around all day. So, as a patient who isn’t moving,patients are most always CoLD. Same is true for pjs–light flannel pants and a long-sleeve tee or sweats are great–and you don’t feel so exposed. A light weight robe for getting into and out of the shower will be good. They should provide shower shoes. If not, you might think about cheap (dollar store) flip flops. You won’t pick up athlete’s foot if you wear shower shoes. Extra underwear is not out of the question.

6. When you go for procedures (like x-rays) always ask the tech if they “see” anything on the x-ray. Counter their argument that they cannot tell you anything with, “Oh, I understand that completely. I just wondered if there were anything I should be sure to ask my doctor about when I see him.” Sometimes, not always, it works to get extra information out of the techs. If you have an MRI while you are there, ask for ear plugs and a washcloth. The magnets are quite loud and the earplugs will help with the racket. The washcloth can be left dry, folded and placed over your eyes so you aren’t tempted to open them while you are in the tube. The tube really freaks me out and the washcloth makes it all better; you may have no problem with it.

7. Do take pencil and paper so you can write down questions and answers. I never remember anything they say to me in hospital. I don’t know if it’s the meds, being scared, or being in denial. But I get home every time saying, “What did he say?” Also take crossword puzzle books, magazines or something you can carry on your lap to entertain yourself with. It will help kill the time sitting in the hallway waiting for your x-rays.

8. If you share a room, ask your nurse if there are any special precautions for infection in your room that you need to be aware of. Could help you in terms of exposing yourself to a hospital “bug.”

9. What’s the hospital policy on cell phones? Do I have a phone in my room and what’s the number?

10. Don’t take anything with you that you care about. No jewelry, not that special pair of slippers. You might have very honest people taking care of you. Still, patients belongings are often returned to the wrong patient. Most likely they will take your jewelry away from you while you are in there to place in a safe or locker. Best to leave it at home.

Hope I haven’t told you too much and overburdened you. Use only the parts of this that you think will help you. I was always glad to be released, but also happy to have the opportunity to find out what’s going on with me. It’s not so bad if you know what’s coming. Best of luck to you; we’ll be thinking about you. Stay in touch as you can. :slight_smile:

Hi Carolynn,

I hope you feel better soon, I'll be thinking of you.

AliC

Thanks everyone for the replies,

I don't feel as apprehensive now. Byrd Feeder thanks for all the info. I will keep you updated , I will be taking my laptop so will post how I'm getting on but hopefully I will only be in for a week but it could be two weeks, who knows....


Carolynn.

Last year my wife had to stay at the hospital with my son for a week. My wife was fine but my 1 year old son couldn't sit or stand. I forget what he had but during that week I brought my wife her laptop and bought a week pass for the internet. I don't think all hospitals have Wifi access but if it does it may help with your extended stay.

Also the room my son was in had TV/DVD and Wii. It was great when my other 2 kids and I visited because the kids had stuff to do. Although that perk was because it was part of the nursery.

Good advice there. The lap top and reading material essential. Be very nice to your nurses. They work really hard and don't mean to neglect you, but they will. Don't be afraid to ask for what you want and need, if you see they are busy, say I know you are busy but can I please have some assistance with whatever. I Have spent a bit of time in hospitals and the nice patients always have a better experience. Make sure everything they put on you, in you or near you is clean, in particular thermometers. It's ok to be vulnerable. I hope you get some help and relief xo

Shel

Hi Carolyn, you are quite welcome. As I read my post to you, I wish I had included to take a button-up top with you to the hospital, too. Slip-overs can be rather inconvenient if you have an IV running, which is pretty standard in hospital these days.

I've been thinking about you and hoping your apprehension and anxiety is lessening, although I'm sure it is daunting looking forward to any hospital stay. Frankly, I find myself a little envious of that kind of attention to medical detail! It sounds like this will be a very positive part of a comprehensive approach to managing your illness. Again, good luck and do stay in touch while you are waiting. There is a wealth of experience and wisdom among members of this site who care very much about what is happening with you!

Bring some good books and don't forget your computer and cell phone charger. See if the hospital has internet, and if they don't, look into one of those USB internet things you can buy at the maybe the grocery store or Wallmart or something. Try to keep moving some while you're at the hospital so you don't lose all your strength.

Ok I don't know from experience, but if you don't have something to do, you will be bored stiff. During the day, write down your questions so you can ask them all when the doc shows up.