Right now, I do spend time helping people advocate for themselves in the NHS. We’re not perfect either. But we do have ways to complain without gross and ignormant power nonsense retribution. And basicially if you can show negligence (rather easy if you’re being treated as an RA patient when in fact you’re an PsA patient) it can motivate some real change when you start involving CEO’s of hospital Trusts and explaining they need to up their risk analysis with regards to x or y numpty rheumy. It also helps that the issues within the NHS are in the media daily so adding to that cacaphony of criticism helps especially when you give them the ‘out’ which is read NG65 (how to treat and disgnose PsA within the NICE guidance so UK based only but can be applied anywhere too) and follow it accordingly. In doing that the patient has the better chance of a better outcome at least.
I’ve never cared about being labelled as anything in my medical notes and records because I come at it from the strength of cogent research so my initial questioning of any stupid proclamations by any doctor usually gets their attention and they start behaving because what I say is backed up by empherical research always. I always take full control of my appt too. In fact I demand it as it’s my appt not theirs at all.