I can remember joining in this group around 5 years ago, and the relief of finding people in similar conditions with concrete advice, sympathy and empathy created a haven for my doubts, fears, and questions which probably saved my life. Comprehension of this disease, and shared insights on effects of therapies, medications, and advice were partly responsible for my current semi full functioning condition. I developed the strength to question therapies, start innovative approaches,develop habits which got me off a wheel chair and back to work, and keep me on my toes for effects and side effects.
I am grateful to everyone in the group, thank you