I am feeling very frustrated today. it has been 2 weeks since my apt with doctor and I am still waiting on prior authorization to go back on the remicade. since it has been 4 weeks now since my last dose of cimzea I am having a terrible flare. spent the day yesterday unable to even get out of my chair without help. at 5 pm yesterday my doc finally returned my call and got me started on a taper of steroids. sure hope they work quick as I am suppose to work tonight. I wish I understood this disease a little more. yesterday my knees and feet hurt so bad I could not walk and now today it is my hands and shoulders. some days I think I am crazy
thank you. I have decided that prednisone is a miracle drug. I know it cant be taken all the time, but one would think that they could come up with a drug safe enough to use every day that replicates the action of prednisone. I started on it 2 days ago and I feel better today then I have in years. time to clean house and try to get some yard work done while I still feel up to it
Make hay while the sun shines, Pink! This has been a good science experiment, you know: the fact that prednisone helped so quickly and so well is evidence that your aches, pain and fatigue are caused by inflammation. Valuable information, and proof that you aren’t crazy!
Too bad about the nasty thinks that prednisone can do to you … still, you’ve got a couple of good days to enjoy!
you are right, enjoy it while I can. I just got the letter from my insurance that remicade has been denied. no medical necessity. they should spend a day in my shoes then tell me its not necessary. well, back to the drawing board I guess. thank god I have a very understanding fiancé and a wonderful step son who help me out and keep my spirits up. it would be so easy to become depressed and just give up, but I refuse to let this disease win.